Alison Chang Email & Phone Number

Cincinnati, Oh, Us

Onsite At The Bill & Melinda Gates Foundation, Seattle

Singapore

www.rabasia.orgwww.worldthroughmyeyes.org.sgwww.rarediseaseasia.org• Engaged, fostered partnerships and managed relationships with diverse stakeholders across Asia-Pacific including patient advocates, patient support organizations, healthcare providers and professionals, pharmaceutical representatives, researchers and healthcare officials.• Supported development and engagement of more than 40 patient support organisations in Asia through training, collaborative projects and seminars.• Orchestrated the inaugural patient-centric Rare Disease Asia Conference 2015 in Singapore and 2016 in Kuala Lumpur, Malaysia, as the Secretary and Project Director.• Organised the inaugural Asia Pacific Lung Health Summit 2016 in Singapore and 2017 in Malaysia, with 19 attending patient support organisations from 10 countries. • Managed the Principles of Hemophilia Care 2016 forum, attended by more than 20 patient advocates, organisation representatives and healthcare professionals from the ASEAN region.• Conceptualised and implemented disease-specific awareness campaigns and events, edited online and print publications.• Devised and administered the patient survey for Hearts, Hopes & Aims: The Singapore Rare Disease Impact Study, to better understand the needs of Singaporean rare disease patients and catalyse strategic framework solutions and a coordinated care plan for patients and caregivers.

• Supervised a team of 7 across the program, education, and transport and logistics departments. Hired and mentored executives and conducted staff evaluations.• Spearheaded development and execution of a therapy assistance program, which provided subsidies for developmentally challenged beneficiaries to receive home and center-based physiotherapy, speech therapy and swimming.• Transformed annual Talent Development Fund and Award Ceremony, Club Rainbow Concert and Art Exhibition.• Identified gaps in education support services and implemented an early childhood education program in 2 hospital-based centers.• Orchestrated annual events such as Club Rainbow Family Retreat and Disease Awareness Days.• Forged partnerships with community organizations, small businesses and large corporations for collaborative awareness building, solicited sponsorship for programs and events, CSR activities, and negotiated in-kind donations for needy beneficiaries.

• Spearheaded implementation of an Enterprise Social Network (ESN) as a member of the core project team.• Collaborated with representatives from various departments to design and develop SingTel ESN hosted on MS SharePoint.• Organised and presented at the First Launch of SingTel ESN.• Created simple user manuals, initiated and conducted training sessions to educate HR staff about SingTel ESN in order to increase usage.

Bachelor Of Arts, Psychology, First Class Honours

Education record

Education record