Amy Gray Email & Phone Number

United States

Washington, District Of Columbia, Us

The UDNF fosters collaboration among patients, clinicians, and scientists to enhance the quality of life of undiagnosed and ultra-rare disease patients. We do this by mitigating barriers to equity and access in healthcare; setting standards for patient management; and bridging diagnosis and therapeutics as well as research and clinical care in undiagnosed patients and patients with ultra-rare diseases.Led by and for patients and their families, the UDNF is a central resource for the undiagnosed community. From when a patient first experiences unexplained symptoms to their 10-year anniversary of effective treatment, the UDNF will provide the resources, community, and research they need to live their best lives. No patient or family will have to traverse the unknown alone.We envision a learning healthcare system where researchers, clinicians, and patients work together to advance individual and community wellbeing. By leveraging advancements in science, technology, and service delivery, we aim to continuously improve health quality and efficiency for undiagnosed patients. Our mission is to improve access to diagnosis, research, and care for all individuals with undiagnosed and ultra-rare conditions.Our vision is healthcare that embraces the unknown and pursues clinical and research solutions for patient wellbeing.Values:Compassion, Empathy, and RespectSocial JusticePatient & Family CenteredIntegrityInnovation, Discovery, and Scaleability Partnerships and Collaboration

Glenolden, Pennsylvania, Us

The CMTA's mission is to support the development of new drugs to treat CMT, to improve the quality of life for people with CMT, and, ultimately, to find a cure.

Miami, Fl, Us

The Parkinson’s Foundation is committed to removing barriers to care, making research inclusive, and ensuring that information and resources are accessible to every person living with Parkinson's.

Miami, Fl, Us

New York, Us

Developed, implemented and monitored an annual budget and work plan, including fundraising, public and professional education programs, support services, leadership development and volunteer recruitment. Worked with the chapter president in developing, recruiting and motivating the board of directors. Identified and implemented creative strategies to meet fundraising goals through special events, direct mail, foundation support, corporate underwriting, major gifts, and grants.Provided leadership to help volunteers establish program goals and objectives, and assisted in implementing program activities and fundraising events.Recruited, selected, trained, developed,and supervised staff, including performance/salary reviews. Created positive work environment and team spirit.

Chicago, Illinois, Us

Stewardship of National Sponsor Representatives and Major DonorsDevelopment of Fundraising Programs in Southeastern U.S.Assisted with management of four Regional offices in Southeastern U.S.Developed Division-wide Staff Training program

Chicago, Illinois, Us

Managed all aspects of six fundraising offices in South Florida Responsible for creation and implementation of annual budget and quarterly goalsDeveloped fundraising programs and special eventsResponsible for hiring, training, management, and development of District and Regional staffDeveloped new income sources, volunteer program, training and marketing materials for fundraising officesResponsible for Health Care Services Program, including MDA Summer Camp Produced South Florida MDA Labor Day Weekend Telethons (2)

Chicago, Illinois, Us

Assisted with management of fundraising offices, fundraising programs and eventsAssisted with hiring, training, management, and development of District staffDeveloped fundraising programs, special events, and volunteer programAssisted with production of MDA Labor Day Weekend Telethon Produced Miami MDA Labor Day Weekend TelethonAssisted with management of Health Care Services Program

Chicago, Illinois, Us

Developed new income sourcesDeveloped fundraising programs & special eventsDeveloped relationships with Regional Sponsor Representatives

Chicago, Illinois, Us

Planned events and fundraising programs

Bachelor Of Science, Marketing

High School, Diploma

Study Abroad, Spanish Immersion