Business Owner - Zebrasite Studios
CurrentWith 15 years of experience in #RareDisease research and advocacy, I built a web design and online services business solely devoted to rare disease patient advocacy organizations. There is more than enough to do as a PAG leader - the website is a universal pain point. When will you have time to make those updates? Even when getting started, the task of building a website is overwhelming and time consuming for someone who doesn't have the experience. I know the burden that is on #PatientAdvocacy leaders and I have always been dedicated to helping make their lives easier anywhere I can. ZebraSite Studios is a full service website studio. We build websites, but also stay on into the future to host, manage, update, protect, and optimize the site. By taking this critical and cumbersome task on, my sincere hope is that the time advocacy leaders get back can be repurposed for fundraising, education, and any of the other countless responsibilities that are placed on their shoulders.