ZebraSite Studios

We ONLY build websites for patient advocacy organizations in the #RareDisease community. Founded by a rare disease researcher who also lives with a rare diagnosis, this true passion project comes with the mission to make life easier for #PatientAdvocacy leaders by giving them time back and taking a mental load off their shoulders. The strength of the brand comes from 15 years of experience working in rare disease biomedical research, registries, patient advocacy, and industry. A consistent problem is the website. This critical piece of any modern organization is often pushed to the back burner to focus on more important things like fundraising or advocating for therapeutic development. We manage existing websites. We also build or redesign websites that are custom fit for each organization and patient community. It doesn't end there, though. We don't just build a website and move on to the next one - we want to be a long-term partner to each organization. Our services occur over an 18 month time period where advocacy leaders have us on standby for edits, updates, troubleshooting, and break-fixes. We host each website ourselves and take on all of the responsibility for managing updates, security, performance, and uptime. Additionally, we provide search engine optimization, graphic design, and email marketing services. For groups that are just starting out, we offer web presence strategy sessions to provide a roadmap for online success.