Founder President Wilhelm Foundation, WillefondenCo-founder board member Undiagnosed Diseases Network International (UDNI). Co-founder Undiagnosed Diseases Network Foundation UDNF.Editorial board member Rare. Open Research in Rare Diseases.EURORDIS Black Pearl Volunteer Award 2018.Swedish Care Heroes 2020My main goal is to help children around the world with an Undiagnosed Disease to a diagnosis. Mother of four children, the three youngest had an undiagnosed disease. No one thought was genetic or fatal disease but it was. In three years Wilhelm 1983-1999, Hugo 1991-2002, Emma 1994-2000 passed away.Founded Wilhelm Foundation in 1999, with the mission to solve unsolved undiagnosed diseases worldwide. Arranged the 1st “International Conference on Rare and Undiagnosed Diseases” with Dr Gahl NIH and Dr Taruscio ISS. Wilhelm Foundation have since then co-arranged 11 together with Dr Gahl and local specialists. Co-founder of the Undiagnosed Diseases Network International (UDNI). The UDNI consists of Undiagnosed Diseases Programs (UDP) all over the world. The number of UDP’s in the Network is growing. Initiator the global Undiagnosed Day April 29 together with UDNI. National and International talks on undiagnosed diseases.Publications:Co-author Position paper of the undiagnosed diseases network international with respect to the establishment of the journal Rare-Open research in rare diseases. (2023)Co-author A call for global action for rare diseases in Africa (2020)Co-author The Undiagnosed Diseases Network International: Five years and more! (2020)Co-author The case for open science: rare diseases (2020)Co-author EURORDIS International Joint Recommendations To Address Specific Needs of Undiagnosed Rare Disease Patients (2016)Co-author Undiagnosed Diseases Network International (UDNI) White paper for global actions to meet patient needs published in Molecular Genetics and Metabolism 116 (2015)