Co Author
CurrentHelped to draft the first ever patient-led framework for AI Rights as part of a Light Collective cohort.
Sep 2023 - Present
AeroLeads people directory · profile
Christine Von Raesfeld π Email & Phone Number
Connector | Storyteller | Patient Perspective | Precision Medicine | Personalized Care | HIMSS #Future50 | Medika Life 50
at
The Light Collective
LinkedIn matched
✓ Verified Jun 2026
3 data sources
Profile completeness 100%
Current company
Role
Connector | Storyteller | Patient Perspective | Precision Medicine | Personalized Care | HIMSS #Future50 | Medika Life 50
Location
San Francisco Bay Area, United States, United States
Who is Christine Von Raesfeld π? Overview
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Quick answer
Christine Von Raesfeld π is listed as Connector | Storyteller | Patient Perspective | Precision Medicine | Personalized Care | HIMSS #Future50 | Medika Life 50 at The Light Collective, based in San Francisco Bay Area, United States, United States. AeroLeads shows a matched LinkedIn profile for Christine Von Raesfeld π.
Christine Von Raesfeld π previously worked as Co Author at The Light Collective and Board Member at The Light Collective. Christine Von Raesfeld π studied at San Jose City College.
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The Light Collective
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Profile bio
About Christine Von Raesfeld π
Few people with a cause walk the talk as boldly and graciously as Christine Von Raesfeld, Christine is a pillar of patient advocacy and allyship in the rare and chronic disease community. Through the lens of her lived experiences in healthcare, she has become a champion for patient voices, diversity and inclusion in clinical research, and equitable patient-sponsor partnerships.Β Christine has brought her unique perspective and honed expertise to countless roles as a featured speaker for numerous conferences on topics ranging from clinical trial recruitment to data & digital rights, from a true patient perspective. She serves as an e-patient scholar with Stanford MedicineX and a Committee Member with the Partnership for Quality Measures (CMS) among other roles. Wherever possible, Christine generates momentum toward progress along her patient advocacy jouney and has become a thought leader worldwide, stimulating dialog on a range of topics relevant to patients, clinicians, and industry.Β Β As a patient advisor, Christine has assisted several initiatives including the Stanford "Humanwide" Precision Medicine Program and the NIH All of Us Research Program and serves as a board member/advisor to multiple organizations and startups. She helped to co-author the patient-led AI Rights Initiative with the Light Collective and focuses on data/digital rights and personalized/precision medicine. For her many contributions to her field, she has been named one of the top 100 Women of Influence by Silicon Valley Business Journal, Silicon Valley Community Hero, a member of the 2021 HIMSS Future50, and one of Medika Life's 50 most influential voices in healthcare.
Listed skills include Microsoft Excel, Sales, Nonprofits, Project Management, and 41 others.
Current workplace
Christine Von Raesfeld π's current company
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30 roles · 9 years
Christine Von Raesfeld π work experience
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Board Member
CurrentNo Aggregation Without Representation.We are on a mission to represent the collective rights, interests, and voices of patient communities in healthcare technology.
May 2022 - Present
Strategic Advisor
Current- Collaborate with researchers, clinicians, and other stakeholders to identify the unmet needs and challenges of patients with rare and undiagnosed diseases- Provide insights and feedback on the design, implementation, and evaluation of research projects and clinical trials that aim to improve diagnosis, treatment, and quality of life for patients with.
Mar 2023 - Present
Prmr/Msr Committee Member
CurrentAs a part of this advisory group, our role is to delve into preliminary assessments, evaluate measures, and contribute insights that drive #discussions within the broader committee as to whether these measures should be considered for adoption into select programs by the Centers for Medicare & Medicaid Services
Nov 2023 - Present
Leadership Council
CurrentThe CNS Summit is a community of innovators and industry leaders who are not afraid to challenge the status quo. The CNS Summit annual meeting convenes 1000+ decision-makers from organizations involved in life science clinical development & healthcare innovation, as well as regulatory authorities, investigator sites, and CRO/service companies.
Jan 2023 - Present
Participant Ambassador (National)
Current
All Of Us Research Nih
Member of PAB (Participant Advisory Board). Have input on AoURP protocols, procedures, communications, and imagery. Provide feedback on tools, processes, and applications. Also participated in AoURP Workgroups, Committee for Access Privacy and Security (CAPS) and the Rare Disease subcommittee
Jun 2022 - Present
Founder/Ceo
CurrentPeople with Empathy is a platform to connect key stakeholders in healthcare in order to improve the quality of life for patients and Care partners.
Mar 2020 - Present
Advisory Board Member
Current
Mar 2022 - Present
Moderator/Host
CurrentCo-moderator and host for Consuli conversations "One Burning Question (OBQ) and "Data Dignity" aimed to address topics related to clinical trials and data sovereignty.
May 2020 - Present
Participant Center Virtual Advisory Team (Vat)
Current
All Of Us Reasearch Program , Nih
Volunteer advisory team member
Jul 2020 - Present
E-Patient Scholar
CurrentEngaged in the Stanford Medicine X ePatient Scholar program, Advocate for patient-centered care, diversity, and inclusion in clinical research. Collaborate with up-and-coming medical students through the SASI summer internship capstone projects.
Aug 2019 - Present
Member Of Community Congress (Regulatory Policy)
Current
Feb 2018 - Present
Patient Advisor
CurrentA patients-only group that collaborates with the company on new research and product development, advocates on behalf of patients, and provides real-world perspectives to industry and PatientsLikeMe partners. Worked closely within the DigitalMe program.
Dec 2017 - Present
Rare Disease Advocate
Current
Rare Disease Legislative Advocates (Rdla)
Aug 2017 - Present
Speaker/Moderator
Current
Freelance
Speaker at multiple industry events, providing a unique patient perspective on topics ranging from recruitment/retention to data/digital health, with a focus on personalized and precision medicine.
Jan 2017 - Present
Patient Advocate
Current
Jun 2016 - Present
Advisor
May 2022 - Jun 2023
Steering Committee Member
May 2018 - Jan 2023
Advisory Board Member
The Human-Centric PlatformThe Jeeva eClinical Cloudβ’ was developed by researchers with empathy who listen and learn to help clinical researchers, hospital sites, academic medical centers, CROs, and biopharmaceutical sponsors accelerate patient enrollment by 3x faster. Jeevaβs flexible & modular bring your own device (BYOD) solution works on any.
Aug 2021 - Jul 2022
Patient Specialist
Bringing the Patient Perspective and insight to the world of Healthcare Marketing in collaboration with People with Empathy.
Aug 2021 - Jul 2022
Moderator/Host/Patient Perspective
Advancing the debate, addressing the inequalities and celebrating the innovations and individuals in healthcare. Join the conversation at https://www.clubhouse.com/club/healthreconsidered M-F 7am PT/10am ET/3pm UK/4pm CET
Apr 2021 - Jul 2022
Freelance Writer
2017 - Jul 2022
Technical Expert Panelist
Volunteer Technical Expert Panelist on Reevaluation of Total Hip and Knee Arthroplasty Outcome Measures
May 2020 - May 2022
Board Member
More Than Lupus
Independent Patient Advocate
Jan 2019 - Jul 2020
Patient Advisor
Jun 2017 - Jun 2020
Jan 2019 - May 2020
Patient Liaison
As patient liaison, I coordinate activities and events with the LFNC and our patient community. I also host their live #Lupus1O1 chat series on Facebook.
Jun 2018 - Dec 2018
Volunteer Patient Education Instructor, Patient Advocate
Nov 2015 - Dec 2018
Social Media Director
Sep 2015 - Oct 2018
Ambassador
CureClick is a unique platform that works with patient activists to spread awareness and understanding of clinical trials
May 2017 - Dec 2018
4 education records
Christine Von Raesfeld π education
Education record
San Jose City College
Associate Of Arts - Aa
Mission College
High School, General Studies
Santa Clara High School
Associate Of Arts (Aa), General Studies
Mission College
FAQ
Frequently asked questions about Christine Von Raesfeld π
Quick answers generated from the profile data available on this page.
What company does Christine Von Raesfeld π work for?
Christine Von Raesfeld π works for The Light Collective.
What is Christine Von Raesfeld π's role at The Light Collective?
Christine Von Raesfeld π is listed as Connector | Storyteller | Patient Perspective | Precision Medicine | Personalized Care | HIMSS #Future50 | Medika Life 50 at The Light Collective.
Where is Christine Von Raesfeld π based?
Christine Von Raesfeld π is based in San Francisco Bay Area, United States, United States while working with The Light Collective.
What companies has Christine Von Raesfeld π worked for?
Christine Von Raesfeld π has worked for The Light Collective, Research To The People, Partnership For Quality Measurement (Pqm), Cns Summit, and All Of Us Research Nih.
How can I contact Christine Von Raesfeld π?
You can use AeroLeads to view verified contact signals for Christine Von Raesfeld π at The Light Collective, including work email, phone, and LinkedIn data when available.
What schools did Christine Von Raesfeld π attend?
Christine Von Raesfeld π studied at San Jose City College.
What skills is Christine Von Raesfeld π known for?
Christine Von Raesfeld π is listed with skills including Microsoft Excel, Sales, Nonprofits, Project Management, Social Media, Customer Service, Management, and Team Building.
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