Christine Von Raesfeld πŸ’œ

Christine Von Raesfeld πŸ’œ Email and Phone Number

Connector | Storyteller | Patient Perspective | Precision Medicine | Personalized Care | HIMSS #Future50 | Medika Life 50 @ The Light Collective
Christine Von Raesfeld πŸ’œ's Location
San Francisco Bay Area, United States, United States
About Christine Von Raesfeld πŸ’œ

Few people with a cause walk the talk as boldly and graciously as Christine Von Raesfeld, Christine is a pillar of patient advocacy and allyship in the rare and chronic disease community. Through the lens of her lived experiences in healthcare, she has become a champion for patient voices, diversity and inclusion in clinical research, and equitable patient-sponsor partnerships.Β Christine has brought her unique perspective and honed expertise to countless roles as a featured speaker for numerous conferences on topics ranging from clinical trial recruitment to data & digital rights, from a true patient perspective. She serves as an e-patient scholar with Stanford MedicineX and a Committee Member with the Partnership for Quality Measures (CMS) among other roles. Wherever possible, Christine generates momentum toward progress along her patient advocacy jouney and has become a thought leader worldwide, stimulating dialog on a range of topics relevant to patients, clinicians, and industry.Β Β As a patient advisor, Christine has assisted several initiatives including the Stanford "Humanwide" Precision Medicine Program and the NIH All of Us Research Program and serves as a board member/advisor to multiple organizations and startups. She helped to co-author the patient-led AI Rights Initiative with the Light Collective and focuses on data/digital rights and personalized/precision medicine. For her many contributions to her field, she has been named one of the top 100 Women of Influence by Silicon Valley Business Journal, Silicon Valley Community Hero, a member of the 2021 HIMSS Future50, and one of Medika Life's 50 most influential voices in healthcare.

Christine Von Raesfeld πŸ’œ's Current Company Details
The Light Collective

The Light Collective

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Connector | Storyteller | Patient Perspective | Precision Medicine | Personalized Care | HIMSS #Future50 | Medika Life 50
Christine Von Raesfeld πŸ’œ Work Experience Details
  • The Light Collective
    Co Author
    The Light Collective Sep 2023 - Present
    Helped to draft the first ever patient-led framework for AI Rights as part of a Light Collective cohort.
  • The Light Collective
    Board Member
    The Light Collective May 2022 - Present
    No Aggregation Without Representation.We are on a mission to represent the collective rights, interests, and voices of patient communities in healthcare technology.
  • Research To The People
    Strategic Advisor
    Research To The People Mar 2023 - Present
    Palo Alto, California, Us
    - Collaborate with researchers, clinicians, and other stakeholders to identify the unmet needs and challenges of patients with rare and undiagnosed diseases- Provide insights and feedback on the design, implementation, and evaluation of research projects and clinical trials that aim to improve diagnosis, treatment, and quality of life for patients with rare and undiagnosed diseases- Advocate for the rights and interests of patients with rare and undiagnosed diseases and raise awareness of their issues among the public, policymakers, and media- Participate in educational and outreach activities to promote the value and benefits of sharing data and engaging in research and clinical care for rare and undiagnosed diseases
  • Partnership For Quality Measurement (Pqm)
    Prmr/Msr Committee Member
    Partnership For Quality Measurement (Pqm) Nov 2023 - Present
    As a part of this advisory group, our role is to delve into preliminary assessments, evaluate measures, and contribute insights that drive #discussions within the broader committee as to whether these measures should be considered for adoption into select programs by the Centers for Medicare & Medicaid Services
  • Cns Summit
    Leadership Council
    Cns Summit Jan 2023 - Present
    Boston, Ma, Us
    The CNS Summit is a community of innovators and industry leaders who are not afraid to challenge the status quo. The CNS Summit annual meeting convenes 1000+ decision-makers from organizations involved in life science clinical development & healthcare innovation, as well as regulatory authorities, investigator sites, and CRO/service companies.
  • All Of Us Research Nih
    Participant Ambassador (National)
    All Of Us Research Nih Jun 2022 - Present
    Member of PAB (Participant Advisory Board). Have input on AoURP protocols, procedures, communications, and imagery. Provide feedback on tools, processes, and applications. Also participated in AoURP Workgroups, Committee for Access Privacy and Security (CAPS) and the Rare Disease subcommittee
  • People With Empathy
    Founder/Ceo
    People With Empathy Mar 2020 - Present
    People with Empathy is a platform to connect key stakeholders in healthcare in order to improve the quality of life for patients and Care partners.
  • Consuli_Inc.
    Advisory Board Member
    Consuli_Inc. Mar 2022 - Present
    San Diego, Us
  • Consuli_Inc.
    Moderator/Host
    Consuli_Inc. May 2020 - Present
    San Diego, Us
    Co-moderator and host for Consuli conversations "One Burning Question (OBQ) and "Data Dignity" aimed to address topics related to clinical trials and data sovereignty.
  • All Of Us Reasearch Program , Nih
    Participant Center Virtual Advisory Team (Vat)
    All Of Us Reasearch Program , Nih Jul 2020 - Present
    Volunteer advisory team member
  • Stanford Medicine X
    E-Patient Scholar
    Stanford Medicine X Aug 2019 - Present
    Stanford, Ca, Us
    Engaged in the Stanford Medicine X ePatient Scholar program, Advocate for patient-centered care, diversity, and inclusion in clinical research. Collaborate with up-and-coming medical students through the SASI summer internship capstone projects.
  • Everylife Foundation For Rare Diseases
    Member Of Community Congress (Regulatory Policy)
    Everylife Foundation For Rare Diseases Feb 2018 - Present
    Washington, District Of Columbia, Us
  • Patientslikeme
    Patient Advisor
    Patientslikeme Dec 2017 - Present
    Boston, Massachusetts, Us
    A patients-only group that collaborates with the company on new research and product development, advocates on behalf of patients, and provides real-world perspectives to industry and PatientsLikeMe partners. Worked closely within the DigitalMe program.
  • Rare Disease Legislative Advocates (Rdla)
    Rare Disease Advocate
    Rare Disease Legislative Advocates (Rdla) Aug 2017 - Present
  • Freelance
    Speaker/Moderator
    Freelance Jan 2017 - Present
    Speaker at multiple industry events, providing a unique patient perspective on topics ranging from recruitment/retention to data/digital health, with a focus on personalized and precision medicine.
  • Wego Health
    Patient Advocate
    Wego Health Jun 2016 - Present
    Boston, Massachusetts, Us
  • Telemedicx
    Advisor
    Telemedicx May 2022 - Jun 2023
    Honolulu, Hawaii, Us
  • Eyeforpharma
    Steering Committee Member
    Eyeforpharma May 2018 - Jan 2023
    London, Gb
  • Jeeva Informatics Solutions Inc.
    Advisory Board Member
    Jeeva Informatics Solutions Inc. Aug 2021 - Jul 2022
    Manassas, Va, Us
    The Human-Centric PlatformThe Jeeva eClinical Cloudβ„’ was developed by researchers with empathy who listen and learn to help clinical researchers, hospital sites, academic medical centers, CROs, and biopharmaceutical sponsors accelerate patient enrollment by 3x faster. Jeeva’s flexible & modular bring your own device (BYOD) solution works on any browser-enabled mobile device & saves >70% logistical burden on study teams and patients. Our modular Software as a Service (SaaS) subscription model helps clinical researchers manage a clinical study’s annual budget on a simple per participant basis.Learn More
  • The Considered
    Patient Specialist
    The Considered Aug 2021 - Jul 2022
    Bringing the Patient Perspective and insight to the world of Healthcare Marketing in collaboration with People with Empathy.
  • Health.Reconsidered
    Moderator/Host/Patient Perspective
    Health.Reconsidered Apr 2021 - Jul 2022
    New York, Us
    Advancing the debate, addressing the inequalities and celebrating the innovations and individuals in healthcare. Join the conversation at https://www.clubhouse.com/club/healthreconsidered M-F 7am PT/10am ET/3pm UK/4pm CET
  • Bionews Services
    Freelance Writer
    Bionews Services 2017 - Jul 2022
    Pensacola, Florida, Us
  • Centers For Medicare & Medicaid Services
    Technical Expert Panelist
    Centers For Medicare & Medicaid Services May 2020 - May 2022
    Baltimore, Md, Us
    Volunteer Technical Expert Panelist on Reevaluation of Total Hip and Knee Arthroplasty Outcome Measures
  • More Than Lupus
    Board Member
    More Than Lupus Jan 2019 - Jul 2020
    Independent Patient Advocate
  • Aurinia Pharmaceuticals Inc
    Patient Advisor
    Aurinia Pharmaceuticals Inc Jun 2017 - Jun 2020
    Edmonton, Alberta, Ca
  • Lupus And Allied Diseases Association, Inc.
    Volunteer
    Lupus And Allied Diseases Association, Inc. Jan 2019 - May 2020
    Verona, New York, Us
  • Lupus Foundation Of Northern California
    Patient Liaison
    Lupus Foundation Of Northern California Jun 2018 - Dec 2018
    San Jose, California, Us
    As patient liaison, I coordinate activities and events with the LFNC and our patient community. I also host their live #Lupus1O1 chat series on Facebook.
  • Lupus Foundation Of Northern California
    Volunteer Patient Education Instructor, Patient Advocate
    Lupus Foundation Of Northern California Nov 2015 - Dec 2018
    San Jose, California, Us
  • Lupus Foundation Of Northern California
    Social Media Director
    Lupus Foundation Of Northern California Sep 2015 - Oct 2018
    San Jose, California, Us
  • Cureclick
    Ambassador
    Cureclick May 2017 - Dec 2018
    Costa Mesa, Ca, Us
    CureClick is a unique platform that works with patient activists to spread awareness and understanding of clinical trials

Christine Von Raesfeld πŸ’œ Skills

Microsoft Excel Sales Nonprofits Project Management Social Media Customer Service Management Team Building Leadership Microsoft Office Event Planning Training Public Speaking Marketing Community Outreach Time Management Public Relations Writing Customer Relationship Management Patient Advocacy Patient Relations Non Profit Volunteering Pharmaceutical Industry Nonprofit Organizations Patient Education Strategic Planning Patient Support Community Building Community Service Health Advocacy Patient Communications Rare Diseases Autoimmune Diseases Networking Personal Support Clinical Trials Healthcare Social Media Marketing Mental Health Facebook Community Engagement Communication Interpersonal Communication Relationship Building Mentoring

Christine Von Raesfeld πŸ’œ Education Details

  • San Jose City College
    San Jose City College
  • Mission College
    Mission College
    Associate Of Arts - Aa
  • Santa Clara High School
    Santa Clara High School
    General Studies
  • Mission College
    Mission College
    General Studies

Frequently Asked Questions about Christine Von Raesfeld πŸ’œ

What company does Christine Von Raesfeld πŸ’œ work for?

Christine Von Raesfeld πŸ’œ works for The Light Collective

What is Christine Von Raesfeld πŸ’œ's role at the current company?

Christine Von Raesfeld πŸ’œ's current role is Connector | Storyteller | Patient Perspective | Precision Medicine | Personalized Care | HIMSS #Future50 | Medika Life 50.

What schools did Christine Von Raesfeld πŸ’œ attend?

Christine Von Raesfeld πŸ’œ attended San Jose City College, Mission College, Santa Clara High School, Mission College.

What are some of Christine Von Raesfeld πŸ’œ's interests?

Christine Von Raesfeld πŸ’œ has interest in Psychology, Social Services, Children, Social Media, Medical Studies, Digital Photography, Arts And Culture, Health.

What skills is Christine Von Raesfeld πŸ’œ known for?

Christine Von Raesfeld πŸ’œ has skills like Microsoft Excel, Sales, Nonprofits, Project Management, Social Media, Customer Service, Management, Team Building, Leadership, Microsoft Office, Event Planning, Training.

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