Danielle Drachmann Email & Phone Number

Skanderborg, DK

Building and maintaining strong multi-stakeholder relationships in research, partnering with patients and relatives within Patient-Centered Research Science at Evidera as part of the Clinical Research Group of Thermo Fisher. Working with the industry's largest international group of patient-centered research scientists to advance engagement of patients as.

Denmark

Ketotic Hypoglycemia International is a global reaching patient organization uniting families impacted by unexplained ketotic hypoglycemia with some of the worlds leading medical experts. Keywords in our work is; co-creation, patient empowerment, patient-driven research.

Research Committee member at the H.C Andersens Children's Hospital, Odense University Hospital, Denmark

Europe

As patients avoid hospitals during the COVID-19 crisis and many traditional methods of care delivery have been stopped, care delivery needs to innovate to avoid serious health complications from denied access to care. This has accelerated a wider trend within healthcare to build solutions that are more patient-centred, more flexible and more accessible..

Danmark

We are the Rare 2030 Young Citizens, representing a new generation of advocates, patients and actors in the rare disease community. We come from diverse backgrounds, different coun- tries and have different experiences of rare diseases – as patients, young parents, doctors, students, and junior policy advisors.

Odense, South Denmark, Denmark

France

The European Joint Programme on Rare Diseases (EJP RD) is a program aiming to create an effective rare diseases research ecosystem for progress, innovation, and for the benefit of everyone with a rare disease. Paediatric expert patients training workshops will be organised with the aim to allow paediatric patients with rare diseases to get skills to be.

The European Health Futures Forum (EHFF) is a not for profit organisation dedicated to improving the health of European citizens through an open interactive and inclusive forum. It is open source and brings together diverse communities, engages citizens by employing methods, technologies and expertise in the task of thinking, debating and shaping the.

Europe

Currently, patients primarily receive their medicines information in the form of a paper leaflet provided with their medicine. This can present challenges to access and understanding – as the text may be printed in very small sizes, may not be easily understandable, and may not be up to date. This challenge is further aggravated for patients that are.

København, Hovedstaden, Danmark

Coordinating European Projects on Health Strategy, Policy, and Communication.

Danmark

Master'S Degree, Anthropology Of Health

Bachelor'S Degree, Social Education