Serving as the visionary and dynamic leader of Solve M.E. while driving organizational growth and advancing our mission. Responsibilities include strategic leadership, financial management, board governance, spokesperson, advocacy, patient engagement, media relations and communications. Oversees budget and program design for all organizational activity including:Advocacy/Government Relations:• Implement multi-year advocacy strategy, including potential legislation. • Lead and… Show more Serving as the visionary and dynamic leader of Solve M.E. while driving organizational growth and advancing our mission. Responsibilities include strategic leadership, financial management, board governance, spokesperson, advocacy, patient engagement, media relations and communications. Oversees budget and program design for all organizational activity including:Advocacy/Government Relations:• Implement multi-year advocacy strategy, including potential legislation. • Lead and collaborate on all substantive advocacy discussions across the ME/CFS, Long COVID and related illness communities• Lead and collaborate on all developments at relevant federal agencies.• Track and advocate on all federal budgetary developments that impact on ME/CFS and Long COVID funding.• Identify and maintain good relations with key congressional staffers.• Implement/Oversee online patient advocacy platform, integrated into CRMPublic/Media Relations • Develop a Public Relations plans to manage all media relations; cultivate media coverage/sources; maintain media database, with the goal of expanding general public awareness of both our organization and the disease. Work with others in the community as appropriate.Engagement• Conceive and implement programs to significantly increase Solve M.E.’s engagement with new patients and their loved ones, including designing new programs • Support patient-driven projects.• Support presentations/speechwriting for live events• Develop and implement plan to engage and manage volunteers to support our organization.Fundraising• Oversee and support all organizational fundraising including major gifts, online campaigns, grant writing and managementResearch• Working closely with the Chief Scientific Officer, deliver research breakthroughs, seed the field for future investment, and elevate lived experience experts in research advisory roles.Organizational Operations Show less

* Design, coordinate, and execute all of the organization’s local and statewide policy advocacy and media campaigns in collaboration with multiple strategic partners and stakeholders regarding a wide variety of political, health, regulatory, and education issues – celebrated over 16 legislative, budgetary, and regulatory victories since 2012* Develop, manage, and implement community, advocacy, training, media, and outreach programming including: Parent Advocacy Mentor Program, Tools For… Show more * Design, coordinate, and execute all of the organization’s local and statewide policy advocacy and media campaigns in collaboration with multiple strategic partners and stakeholders regarding a wide variety of political, health, regulatory, and education issues – celebrated over 16 legislative, budgetary, and regulatory victories since 2012* Develop, manage, and implement community, advocacy, training, media, and outreach programming including: Parent Advocacy Mentor Program, Tools For Transformation Conference, Joe Patton Academy Summer Camp, Back To School Health and Resource Fair, Parent Advisory Council, the Annual Autism Advocacy Rally, and other individual projects* Secured numerous government partnerships, foundation grants, and fundraising campaigns – increasing organizational budget from $530,000 in 2010 to $1.9 million in 2013* Compose political letters of support, press releases, policy statements, organizational correspondence, website content, grant proposals, donor letters, solicitation letters, thank you letters, and timely social media content* Public representative and public relations including press conferences, speeches, media appearances and press relations, interviews, trainings, and coalition liaison* Compose political letters of support, press releases, policy statements, organizational correspondence, website content, grant proposals, donor and solicitation letters, thank you letters, eblasts, newsletters, and timely social media content* Manage a 4-person outreach, policy and development team*Coordinate all organizational policy action campaigns at the State level*Coordinate inter-organizational partnerships, collaborate with multiple stakeholders and strategic partners*Grant writing and management*Sponsorship coordination and solicitation*Fundraising campaigns*Event coordination*Database management*Donor coordination*Policy statements*Issue campaign management*Public relations and organizational representation Show less

- Manage and implement community, advocacy and outreach programming including: Parent Advocacy Mentor Program, Tools For Transformation Conference, Joe Patton Academy Summer Camp, Back To School Health and Resource Fair, Stepping Stones Campaign, Equality for Our Kids Campaign, Parent Advisory Council, and other individual projects.- Recruit and secure event and program sponsorship, individual donors, corporate donors, mentor programs, grant relationships, in-kind donations, and strategic… Show more - Manage and implement community, advocacy and outreach programming including: Parent Advocacy Mentor Program, Tools For Transformation Conference, Joe Patton Academy Summer Camp, Back To School Health and Resource Fair, Stepping Stones Campaign, Equality for Our Kids Campaign, Parent Advisory Council, and other individual projects.- Recruit and secure event and program sponsorship, individual donors, corporate donors, mentor programs, grant relationships, in-kind donations, and strategic, community, celebrity, and organizational partnerships.- Plan, coordinate, and execute numerous fundraisers and fundraising campaigns – increasing organizational budget from $530,000 in 2010 to $1.9 million in 2012.- Sole responsibility for grant management including relationship building, application processes, composition, budgets, MOUs, presentations, and reporting – secured over $1.3 million in long-term grants through 2017.- Author press releases, policy statements, organizational correspondence, website content, grant proposals, donor letters, solicitation letters, thank you letters, and timely social media content. Show less

Autism is the fastest-growing childhood disease in America. A recent study published in the American Academy of Pediatrics Journal confirms that one in every 91 American children, including one in every 58 boys born today will be diagnosed with autism. In California alone, two children are diagnosed every hour. Special Needs Network, Inc. is responding to the crisis of autism and other developmental disabilities in underserved communities by providing educational forums, resources, and… Show more Autism is the fastest-growing childhood disease in America. A recent study published in the American Academy of Pediatrics Journal confirms that one in every 91 American children, including one in every 58 boys born today will be diagnosed with autism. In California alone, two children are diagnosed every hour. Special Needs Network, Inc. is responding to the crisis of autism and other developmental disabilities in underserved communities by providing educational forums, resources, and specialized learning opportunities for parents and care givers of special needs children, intervention programs and advocacy training. Show less

* Developed and established the Veterans History Project with the Long Beach VA - www.veteranshistoryproject.org* Awarded certificate of recognition from the American Red Cross Greater Los Angeles chapter* Review and edit promotional materials and marketing campaigns for Veterans, Heifer International, and Library of Congress* Recruit, organize and coordinate veterans interviews to be preserved for the Library of Congress* Budget, employee, and timeline management for VHP and… Show more * Developed and established the Veterans History Project with the Long Beach VA - www.veteranshistoryproject.org* Awarded certificate of recognition from the American Red Cross Greater Los Angeles chapter* Review and edit promotional materials and marketing campaigns for Veterans, Heifer International, and Library of Congress* Recruit, organize and coordinate veterans interviews to be preserved for the Library of Congress* Budget, employee, and timeline management for VHP and Heifer International pro-bono projects* Maintain a working relationship non-profit groups, local associations, and Library of Congress* Promote services to government agencies* Office management, payroll, inventory, day-to-day coordination, and project manager of upcoming remodel of retail space. Show less

* Strategized and implemented the Rethink Afghanistan campaign including major grassroots actions, political advocacy campaigns, veterans collaboration, media and organizational partnerships; coordinated 1,300 screenings internationally in the first year. View the campaign impact report here: http://rethinkafghanistan.com/2012_RTA_Impact_Report.pdf * Planed and executed extensive Congressional outreach campaigns, resulting in face-to-face congressional meetings, Federal access, and… Show more * Strategized and implemented the Rethink Afghanistan campaign including major grassroots actions, political advocacy campaigns, veterans collaboration, media and organizational partnerships; coordinated 1,300 screenings internationally in the first year. View the campaign impact report here: http://rethinkafghanistan.com/2012_RTA_Impact_Report.pdf * Planed and executed extensive Congressional outreach campaigns, resulting in face-to-face congressional meetings, Federal access, and supportive statements on the floor of the House* Coordinate social media outreach, branding, recruitment, and postings for seven simultaneous activism campaigns* Research and prepare extensive reports, outreach reports, and grant summations Show less

*Lobbied for the interests of state legislators and advocated for policy positions established by the organization, maintained positive relationships with Federal agencies, Congressional offices, partners, and stakeholders* Authored legislative summaries, political white papers, amicus briefs, and policy updates for State Legislators, eblasts, and newsletters* Monitored and reported on current Federal and State regulatory and legislative actions regarding tracked issues* Staffed the… Show more *Lobbied for the interests of state legislators and advocated for policy positions established by the organization, maintained positive relationships with Federal agencies, Congressional offices, partners, and stakeholders* Authored legislative summaries, political white papers, amicus briefs, and policy updates for State Legislators, eblasts, and newsletters* Monitored and reported on current Federal and State regulatory and legislative actions regarding tracked issues* Staffed the Health & Human Services and the Law & Criminal Justice Policy Committees; coordinated committee meetings, panels, banquets, press conferences, sponsors, and logistics for three annual conferences, up to 7K attendees* Website management, outreach, content, and design collaboration – www.ncsl.org Show less

* Researched, reported, and wrote weekly articles for California Institute Bulletin (a weekly policy newsletter) including: federal budget analysis, committee hearing summaries, issue papers, press releases, etc.* Extensive activity on Capitol Hill tracking and reporting on legislation, hearings, funding, budgetary process, committee activity, and member statements with corresponding media and press relationships* Scheduled VIP networking events for the California Institute’s Advisory… Show more * Researched, reported, and wrote weekly articles for California Institute Bulletin (a weekly policy newsletter) including: federal budget analysis, committee hearing summaries, issue papers, press releases, etc.* Extensive activity on Capitol Hill tracking and reporting on legislation, hearings, funding, budgetary process, committee activity, and member statements with corresponding media and press relationships* Scheduled VIP networking events for the California Institute’s Advisory Board with a different member of the California Congressional delegation as guest speaker each month and associated media releases Show less

Responsible for maintaining and updating the complete Government Documents, Periodicals, and Legal Department (including the extensive International Law, California Government, and National Archives Depository collections)Supervise a staff of 20 employees including special projects, payroll, training, education and schedulingWeekly scheduled shifts at reference desk, welcome desk, library tours, and research training seminarsCommittee member charged with improvements… Show more Responsible for maintaining and updating the complete Government Documents, Periodicals, and Legal Department (including the extensive International Law, California Government, and National Archives Depository collections)Supervise a staff of 20 employees including special projects, payroll, training, education and schedulingWeekly scheduled shifts at reference desk, welcome desk, library tours, and research training seminarsCommittee member charged with improvements, budgeting, operations, and planning for the Claremont College Libraries Show less

Formed coalitions and partnerships between various on-campus, off-campus, and community political organizationsResponsible for creating and maintaining a data base and mailing list of thousands of contactsAuthored press releases, policy updates, and action alerts for on and off campus supportersPlanned and organized a multitude of political, recruiting, public relations, fund raising, and social events