Lead an initiative to secure a National Plan for the Epilepsies through legislative authorization and appropriations. Build coalition of diverse epilepsy patient and professional stakeholders. Develop messaging and strategies.

Co-developed the first ever Rare Epilepsy ECHO to transfer knowledge from thought leaders to health care practitioners nationwide. Developing second rare epilepsy ECHO program and US epilepsy HUB.

Rare Epilepsy Network (REN) is a network including 100 plus individual rare epilepsy disorder organizations collaborating to increase awareness and research for the rare epilepsies.

Results driven leader with 20+ years experience in management, strategic planning, coalitionbuilding, marketing, fundraising, and program development and oversight. Passionate advocatewith proven ability to develop a vision, achieve consensus, and deliver results in nonprofit andcommercial settings. Entrepreneurial innovator and creative solution finder. Deeply committed to improving the lives of persons touched by epilepsy and rare disease. Strong leadership, interpersonal, and communication skills.

Co-founded 501c3. Lead corporate, major donor and 3rd party fundraising. Built and manage Medical Advisory Board and research initiatives. Maintain up-to-date resources and website for patients, professionals and the public. Spearhead public awareness & strategic partnerships. Organize International Symposium to set 5-year research roadmap. Newsletter Editor and database manager. National epilepsy walk organizer.

Custom built and launched dynamic website and database connecting busy parents with kids classes and camps. Raised $200k angel funding. Grew to 5+ major metropolitan counties – generating $100k+ revenue from 600 businesses and 100,000 inventory. Led site design and development overseeing a team of programmers. Spearheaded all strategic partnerships, PR, marketing, & SEO. Managed operations and supervised staff, contractors, and interns. Acquired by Thrively, personalized learning platform, Dec. 2018.

Counseled law school admission applicants on strategy and submissions. Presented seminars. Edited “Get Into Law School” (Fourth Edition)(2008). Awarded 2006 & 2009 Consultant of the Year.

Led several large-scale capital ($100M) and fundraising campaigns ($1-4M). Facilitated multiple interagency collaborations. Strategic Advisor to Executive Director and Board.

Grew national 501c3 from <$500k to $3M. Managed, professionalized, and grew operations, staff, fundraising, programs, research, and patient services. Advised Board of directors on merger with competitor foundation. First professional Executive Director following founders.

Counseled coalition of major national cancer organizations and implemented legislative, executive branch, grassroots and media strategies to increase federal cancer appropriations.

Represented individuals and non-profits before federal district and appellate courts, federal agencies, and Congress at public interest legal clinic. Supervised 3rd year law students.