The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis. CRN began with a vision in 1996. The vision of one family, which gradually grew to include hundreds more. As our network of families grew, we began to see the need to do more. Concerned for the future of those living with this disease, we realized that if we didn’t step up to the plate and set that agenda, no one else was going to. With the guidance and advice of our medical and scientific community the Cystinosis Research Network was launched. In the past two decades CRN has grown from a “kitchen table” rare disease group of parents to an internationally recognized rare disease advocacy organization which has funded millions of dollars in research, provided family support including sponsorship of 8 biennial family conferences around the U.S., and educated the public and professional communities about cystinosis via access to standards of care, brochures and sponsorship and exhibition in professional conferences around the world.The CRN’s vision is the acceleration of the discovery of a cure, development of improved treatments and enhancement of quality of life for those with cystinosis. Our commitment to our community lies in our tireless efforts to provide family assistance through facilitating several support groups as well as hosting a family conference every other year. At this conference we bring families and the medical community together in hopes to accelerate the accomplishment of our stated goals and objectives.

Responsible for developing and cultivating lasting client relationships that promote retention and loyalty while representing the voice of the client to provide input into every core product, and marketing/sales process. The VPCS will work closely with executive team members and training staff to ensure client satisfaction with regards to all facets of services rendered and to improve upon areas of dissatisfaction while driving customer success outcomes. This is accomplished through increased client renewal rates and churn reduction, influencing future lifetime value through higher product adoption, customer satisfaction and overall health scores. Through policy and procedural optimization the VPCS aims to elevate the customer experience for ultimate “team buy-in” as well as regular-interval check-in sessions where all facets of the clients’ growth chart are measured and interpreted with goal-oriented, actionable outcomes based on each client’s individual positive and negative drivers. The VPCS will seek to better understand customer outcomes through ongoing collection and analysis of data and feedback, subsequently turning this into on-boarding and retention strategies that feed into the Revive road map to overarching optimal client health and overall success.At Revive Strength and Wellness it is our mission to foster an environment where clients are empowered and inspired to grow together and become their best selves in mind and body.Vision - Create an environment of individualized attention where clients will: Believe - in themselves and the process Belong - to a positive community and a positive mindset Become - the best version of themselves in mind and body

BSN-prepared critical care RN providing excellent patient-centered care to emergent/urgent trauma cases in the tri-states only level 1 trauma center."We take the sickest of the sick."

Currently responsibilities include the safe service of all alcoholic beverages to bar patrons, general maintenance and up keep.

ISSA Trained and Nationally certified Personal Trainer with Sensible Fitness. I work with clients to perform a varied plan to increase metabolism, stamina, muscle tone and endurance with sound training methods and nutrition.