Kathi Luis Email & Phone Number

Clarkston, Michigan

Kathi Luis, DMS, is the Special Projects Director for the Amyloidosis Foundation and is invested in the rare disease patients, families and caregivers that her nonprofit serves. She received her Allied Health degree from Baker College in Owosso, Michigan. She has also successfully completed The Henry Ford Caregiver College Sessions certification. Kathi advocates regularly to educate Congressional and Senate members on amyloidosis and for legislation for all rare diseases.She… Show more Kathi Luis, DMS, is the Special Projects Director for the Amyloidosis Foundation and is invested in the rare disease patients, families and caregivers that her nonprofit serves. She received her Allied Health degree from Baker College in Owosso, Michigan. She has also successfully completed The Henry Ford Caregiver College Sessions certification. Kathi advocates regularly to educate Congressional and Senate members on amyloidosis and for legislation for all rare diseases.She is a member of the Community Congress, dedicated to bringing patient organizations, industry leaders and other rare disease stakeholders together. The Congress acts as a strategic advisory council, providing advice and insight on urgent policy issues and Foundation programs and initiatives. Kathi is also a member of the Regulatory Science Working Group, Public Policy Working Group, former RDLA Advisory Committee, All Copays Count Coalition, US hATTR Amyloidosis Advisory Board, Research America Alliance member, Alnylam Patient Advocacy Leadership Advisory Board, Eidos Patient Advocacy Organization Leader and an API Ad Hoc Advisory Board. She travels to Washington DC to participate in Rare Disease Week on Capitol Hill. There she attends a legislative conference and a rare disease congressional caucus briefing. Kathi also advocates for rare diseases with the NIH, FDA and with members of Congress.Kathi believes that “We are our best advocates”, and encourages people to take charge of their own health. Successful health advocates feel more confident about the choices they make with their doctors. They’re often healthier or even live longer than people who let others make all of their health care decisions! Show less

Michigan

Proven leader responsible for the daily operations of the Detroit area market.

Responsible for performing quality sonographic studies by following established protocols and physician orders to provide excellent diagnostic data for interpretation by the Radiologist