Kathi Luis

Kathi Luis Email and Phone Number

Amyloidosis Foundation- Special Projects Director @ Amyloidosis Foundation
michigan, united states
Kathi Luis's Location
Detroit Metropolitan Area, United States
About Kathi Luis

Supporting patients and families while promoting research, education and awareness.

Kathi Luis's Current Company Details
Amyloidosis Foundation

Amyloidosis Foundation

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Amyloidosis Foundation- Special Projects Director
michigan, united states
Website:
amyloidosis.org
Employees:
4
Kathi Luis Work Experience Details
  • Amyloidosis Foundation
    Special Projects Director
    Amyloidosis Foundation Mar 2016 - Present
    Clarkston, Michigan
    Kathi Luis, DMS, is the Special Projects Director for the Amyloidosis Foundation and is invested in the rare disease patients, families and caregivers that her nonprofit serves. She received her Allied Health degree from Baker College in Owosso, Michigan. She has also successfully completed The Henry Ford Caregiver College Sessions certification. Kathi advocates regularly to educate Congressional and Senate members on amyloidosis and for legislation for all rare diseases.She… Show more Kathi Luis, DMS, is the Special Projects Director for the Amyloidosis Foundation and is invested in the rare disease patients, families and caregivers that her nonprofit serves. She received her Allied Health degree from Baker College in Owosso, Michigan. She has also successfully completed The Henry Ford Caregiver College Sessions certification. Kathi advocates regularly to educate Congressional and Senate members on amyloidosis and for legislation for all rare diseases.She is a member of the Community Congress, dedicated to bringing patient organizations, industry leaders and other rare disease stakeholders together. The Congress acts as a strategic advisory council, providing advice and insight on urgent policy issues and Foundation programs and initiatives. Kathi is also a member of the Regulatory Science Working Group, Public Policy Working Group, former RDLA Advisory Committee, All Copays Count Coalition, US hATTR Amyloidosis Advisory Board, Research America Alliance member, Alnylam Patient Advocacy Leadership Advisory Board, Eidos Patient Advocacy Organization Leader and an API Ad Hoc Advisory Board. She travels to Washington DC to participate in Rare Disease Week on Capitol Hill. There she attends a legislative conference and a rare disease congressional caucus briefing. Kathi also advocates for rare diseases with the NIH, FDA and with members of Congress.Kathi believes that “We are our best advocates”, and encourages people to take charge of their own health. Successful health advocates feel more confident about the choices they make with their doctors. They’re often healthier or even live longer than people who let others make all of their health care decisions! Show less
  • Cheryl Waring, Realtor
    Social Media Director
    Cheryl Waring, Realtor Feb 2017 - Mar 2019
  • Arise And Shine Enterprises
    Sales Manager
    Arise And Shine Enterprises Aug 2011 - Oct 2015
    Michigan
    Proven leader responsible for the daily operations of the Detroit area market.
  • Mclaren Macomb Medical Center
    Dms Intern
    Mclaren Macomb Medical Center Aug 2011 - Jul 2012
    Responsible for performing quality sonographic studies by following established protocols and physician orders to provide excellent diagnostic data for interpretation by the Radiologist

Kathi Luis Education Details

  • Baker College Of Owosso
    Baker College Of Owosso
    Dms

Frequently Asked Questions about Kathi Luis

What company does Kathi Luis work for?

Kathi Luis works for Amyloidosis Foundation

What is Kathi Luis's role at the current company?

Kathi Luis's current role is Amyloidosis Foundation- Special Projects Director.

What schools did Kathi Luis attend?

Kathi Luis attended Baker College Of Owosso.

Who are Kathi Luis's colleagues?

Kathi Luis's colleagues are Joe Doe.

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