Director Of Communications
CurrentOur mission at FARA is to treat and cure FA by marshaling and focusing global resources and relationships.My Role:Survey all organization communications and develop and implement a cohesive communications strategy across programs and focus on key stakeholder engagement.Help lead the vision for communications at the organization, including key messaging.Curate and reinforce FARA’s brand, both in graphic design and written content for public-facing materials.Develop the… Show more Our mission at FARA is to treat and cure FA by marshaling and focusing global resources and relationships.My Role:Survey all organization communications and develop and implement a cohesive communications strategy across programs and focus on key stakeholder engagement.Help lead the vision for communications at the organization, including key messaging.Curate and reinforce FARA’s brand, both in graphic design and written content for public-facing materials.Develop the annual publication of the Donor Impact Report.Write and design development documents, including fundraising proposals, publications, and communication materials.Write and design for patient education materials (ie new clinical trial opportunities or research initiatives etc).Draft scripts for video.Oversee planning for social media (including calendar, graphics, and content) to build audience engagement for FARA Facebook, Instagram, LinkedIn, and Twitter Pages.Review email markeing for clear and consistent messaging, clean/ branded formatting, good grammar, and no typographical errors.Collaborate closely with other programmatic departments such as Fundraising, Research, Global Partnerships, and Advocacy to develop key supporting materials.Help foster best practices and clear content for FARA’s online presence.Provide general editing (grammatical and typo) support for the FARA staff upon request.Submit regular reports on communications activities, engagement levels, and progress.Foster awareness of Friedreich’s ataxia and FARA through PR.Write press releases for science news and local events such as key branded and grassroots events and awareness initiatives.Build relationships with relevant media on behalf of FARA.Represent FARA at fundraising events.Ensure accurate, timely, and stakeholder-friendly communications. Show less