The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances.
FARA was founded in September 1998 by a group of patient families and three of the world’s leading FA scientists — Drs. Rob Wilson, Bronya Keats, and Massimo Pandolfo. It was staffed and managed as an all volunteer organization until late 2005. FARA's leadership and numerous patient families and friends have raised critical funds over the years to support FA research. Thanks to the brilliant and committed efforts of many FA scientists, we now understand the cause of FA and specific mechanisms leading to damage in FA patients. These understandings allow for more targeted approaches to treatment which are currently being developed for clinical trials.
Company Details
- Employees
- 44
- Founded
- -
- Address
- 533 W. Uwchlan Ave, Downingtown,pa 19335,united States
- Phone
- (484) 872-1402
- Industry
- Research Services
- NAICS
-
Scientific Research and Development ServicesResearch and Development in the Physical, Engineering, and Life SciencesResearch and Development in the Physical, Engineering, and Life Sciences (except Nanotechnology and Biotechnology)
- Website
- curefa.org
- Keywords
- Non-profit, Research, Fundraising, Advocacy, Rare Disease, Patient Voice, Grants, Conferences, Grassroots.
- HQ
- Downingtown, PA
Friedreich's Ataxia Research Alliance (Fara) Questions
Friedreich'S Ataxia Research Alliance (Fara)'s helpline number is (484) 872-1402
Friedreich'S Ataxia Research Alliance (Fara)'s website is curefa.org
Friedreich'S Ataxia Research Alliance (Fara)'s LinkedIn profile is https://www.linkedin.com/company/fara
Friedreich'S Ataxia Research Alliance (Fara) has
44 employees.
View email and phone details for 44
employees at Friedreich'S Ataxia Research Alliance (Fara).
Friedreich'S Ataxia Research Alliance (Fara)'s industry is
Research Services
Friedreich'S Ataxia Research Alliance (Fara)'s top competitors are
National Ataxia Foundation,
Ptc Therapeutics, Inc.,
Ataxia Foundation,
Biogen,
Ataxia Uk,
Solid Biosciences,
National Organization For Rare Disorders,
Fara Australia - Friedreich Ataxia Research Association,
Larimar Therapeutics Inc.,
International Congress For Ataxia Research (Icar).
Friedreich'S Ataxia Research Alliance (Fara)'s categories are Research Services
Friedreich'S Ataxia Research Alliance (Fara)'s founding year is 1998
