Friedreich's Ataxia Research Alliance (FARA)

Company Email Format Management

Friedreich's Ataxia Research Alliance (FARA)

Research Services Downingtown, Pennsylvania, United States 44 employees

Employees: 44
Contacts: 3
Emails: 3
Phones: 3

curefa.org LinkedIn

Friedreich's Ataxia Research Alliance (FARA) Overview

Headquarters: Downingtown, Pennsylvania, United States
Phone Number: Available in AeroLeads
Website: curefa.org
Industry: Research Services
Employees: 44
Founded: 1998
Company Email: Available in AeroLeads
NAICS: Scientific Research and Development Services

Research and Development in the Physical, Engineering, and Life Sciences

Research and Development in the Physical, Engineering, and Life Sciences (except Nanotechnology and Biotechnology)

Keywords

Non-profit Research Fundraising Advocacy Rare Disease Patient Voice Grants Conferences Grassroots

About Friedreich's Ataxia Research Alliance (FARA)

The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances. FARA was founded in September 1998 by a group of patient families and three of the world’s leading FA scientists — Drs. Rob Wilson, Bronya Keats, and Massimo Pandolfo. It was staffed and managed as an all volunteer organization until late 2005. FARA's leadership and numerous patient families and friends have raised critical funds over the years to support FA research. Thanks to the brilliant and committed efforts of many FA scientists, we now understand the cause of FA and specific mechanisms leading to damage in FA patients. These understandings allow for more targeted approaches to treatment which are currently being developed for clinical trials.

Friedreich's Ataxia Research Alliance (FARA) Contact Details

People in AeroLeads: 4
With contact data: 3
Email contacts: 3; 75.0% coverage
Phone contacts: 3; 75.0% coverage

Friedreich's Ataxia Research Alliance (FARA) Org Chart

Sample employees and titles

Name	Title	Location	Contact
James Mcarthur	Chief Executive Officer at Pepgen	Boston, Massachusetts, United States	Email Phone
Barbara T.	Chief Scientific Officer	Cambridge, Massachusetts, United States	View
Kevin Whittlesey	Experienced Product Development	United States	Email Phone
Kyle Bryant	Sr. Director, Rideataxia and Fara	Devon, Pennsylvania, United States	Email Phone