Rare Disease, Disability and Autism Advocate. Professional work experience within Education, Health Care Industry, Medical/Hospital Research Administration. Skilled in Program Management, Program Consulting, Grant Writing, Child/Family Services, Special Education and Public Speaking. DIR/Floortime Intervention, Individual Program Planning, Therapeutic Intervention for Children with Autism, Developmental Delays and Sensory Processing Disorders.2023 - Nominated and Top 3 Finalist for an Everylife Foundation - Rare Voice Award, Advocacy at the State Level by a Nonprofit Organization - Texas Rare Alliance. Successful advocacy for legislative bills to improve and expand Newborn Screening, Biomarker Insurance Coverage and "All Copays Count" to ensure all copays are counted towards an insured person's deductible and out-of-pocket maximum.Personal Lived Experience Expert: CVID, Myasthenia Gravis, Ehlers-Danlos Syndrome Hypermobility Type, FMD, Psoriatic Arthritis, SLECurrent: Consultant - Rare Disease and Disability: Awareness, Education and Policy Work Experience:- Texas Rare Alliance, Austin, TX: Executive Board Member, Director of Strategic Advancement- Texas Children's Hospital, Houston, TX: Manager/Educator, The Bridges Therapeutic Program for Children with Delays in Relating and Communication; Research Grant Administrator, Texas Children's Research Administration - Westminster Community College, Westminster, CO: Grant Writer, Coordinator, Family Services Office - Educational Testing Services, Princeton, NJ: Administrative Coordinator, Office of Quality Assurance - Grosse Pointe Pre-K, Grosse Pointe, MI: Lead Teacher - Oakland Family Services, Pontiac, MI: Teen Parent Program CoordinatorVolunteer Experience: - Autism Speaks - National Organization for Rare Disorders (NORD) - The Everylife Foundation for Rare Diseases and Rare Disease Legislative Advocates - Saving Rare Treatments Task Force, Federal Legislation Advocacy