Samantha Barber Email & Phone Number

Bexhill, Gb

Board Director for this not for profit organisation with the aim to advance knowledge in rare diseases

London, Gb

Having completed two demergers of parts of the charity, a rebrand and creating a new strategy, I am now focussing on creating a strong and sustainable organisation that improves the lives of those affected by genetic conditions and their families. Gene People is focused on three strategic pillars: Support and Information; Strengthening condition-specific support groups; and Advocacy and Inclusion.Member of the Association of the British Pharmaceutical Industry Patient Advisory Council https://www.abpi.org.uk/abpi-patient-advisory-council-membersRegular speaker for in-person and online events and contributer to reports.Previously shared this role with Lisa Gagliani MBE.I have also given consultancy services for a housing and refugee charity and a women's health charity during this time. I currently have capacity for additional consultancy or paid board role.

London, Gb

This freelance consultancy role involves assessing grant applications from small organisations (turnover of no more than £500,000pa).

Leicester, Leicestershire, Gb

Co-opted Trustee of RAFA and Trustee of RAFA Housing from Nov 2021.Previously Committee member of the FAC Committee until Oct 2021.

Amber Housing is a housing and facilities managment Community Benefit Society that is part of the Ambient Support Group (previously Heritage Care Group). We provide high quality services to providers of support and care to adults with a range of vulnerabilities. We are also property developers with a portfolio of accommodation for vulnerable adults.As Chair, I have expanded the membership of the board, led the creation of a new strategy, and conducted a governance review.

Herne Hill, Gb

Member of the Board of Trustees for this wonderful almshouse that also provides property management services to other almshouses in London.

All round charity consultancy. Some services offered through Blume.

Epsom, Surrey, Gb

Shared CEO role with Louise Fish. My focus was finance, income generation and access to medicines

Shipley, Gb

Small national charity supporting families and children affected by Batten disease, also known as childhood dementia, raising awareness and seeking a cure. Secured access to first ever treatment for any form of Batten disease in Sept 2019 through public campaign and engaging with MPs and NICE. Achieved financial turnaround and staff restructure. Key role in the wider rare disease sector, representing Batten disease on LSD Collaborative Committee, participating in Dementia Strikes Children Too campaign and contributing to many rare disease forums.

National charity that provided IT training to disabled adults.

London, Gb

Managed a team of 8 covering all aspects of fundraising and communications with additional responsibility for public affairs and our research work. Also worked on Stoll's Centenary Appeal.

London, Gb

Stoll has been providing housing and support to vulnerable and disabled Veterans for almost a century.Secured multi-million capital grants for new housing developments.Create and implement fundraising and communications strategiesOversee Stoll’s policy work including national research project with University of York and Riverside ECHGDirector of Stoll Industries Ltd

London, England, Gb

Social Care Institute for Excellence (SCIE) is the UK resource of good practice and knowledge aimed at the improvement of social care services.Led SCIE’s part of C4EO consortium including devising product and marketing strategies involving over 90 partner organisations - Department for Education evaluation (published after role ended) shown belowManaging substantial budgetWorked on Learning Together programme (link to details below)

In Kind Direct redistributes products from companies to the not for profit, saving waste and resources.Devised marketing strategiesCreated partner communications materials and strategyImplemented membership recruitment strategy

London, Gb

Shelter helps millions of people who are homeless or in bad housing each year.Devised and implemented marketing strategies for Shelter’s products and servicesSubstantially increased income from commercial products

London, Gb

London, Gb

British Youth Council empowers young people across the UK to have a say and be heard.Implemented the UK part of a European consultation with young peopleOversaw rebranding of all communications materials

London, Gb

NCVO is the largest umbrella body for the community and voluntary sector in England.Increased income from publicationsEdited major titles including The Good Trustee Guide

Msc, Voluntary Sector Management

Ma, Victorian Studies

Ba, English Literature

Education record