Susan Brisendine (Sikora)

Susan Brisendine (Sikora) Email and Phone Number

Vice President, Partnerships and Innovation @ NephCure
Chapel Hill, NC, US
Susan Brisendine (Sikora)'s Location
Raleigh-Durham-Chapel Hill Area, United States, United States
About Susan Brisendine (Sikora)

Patient Advocacy Leader | Program Strategist | Communications Expert | Rare Disease Champion More than 25 years experience in communications, patient engagement and advocacy, and public relations in the pharmaceutical/biotech industry, agency, nonprofit and services sectors.Extensive experience in drug development/clinical trials, disease awareness, issues management/education and thought leadership. Specialist in stakeholder engagement and business development -- identifying and creating opportunities for common cause alliances among industry, advocacy, academia and the healthcare community; successful track record in fostering relationships to advance patient care and organization objectives.Facilitator of dozens of advisory boards and strategic planning, branding and messaging sessions; seasoned speaker, speaking coach and moderator.Consensus creator. Builds others up.Deep experience in: neuroscience, gene and cell therapy, rare disease, cancer, newborn screening.Other areas of significant experience: hemoglobinopathies, metabolic health and diabetes, dermatology, infectious disease, women's health, pediatrics, nutrition.

Susan Brisendine (Sikora)'s Current Company Details
NephCure

Nephcure

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Vice President, Partnerships and Innovation
Chapel Hill, NC, US
Website:
bluebirdbio.com
Employees:
201
Susan Brisendine (Sikora) Work Experience Details
  • Nephcure
    Vice President, Partnerships And Innovation
    Nephcure
    Chapel Hill, Nc, Us
    View
  • Bluebird Bio
    Director, Patient Advocacy
    Bluebird Bio Feb 2023 - Present
    Somerville, Massachusetts, Us
    Building trusting relationships with patient advocacy organizations to bring the patient voice into our organization, help meet the needs of the community, and partner in areas of common cause. Bridging the gene therapy education gap.
    View
  • Novartis Gene Therapies
    Director, U.S. Advocacy Excellence & Operations
    Novartis Gene Therapies Oct 2020 - Feb 2023
    Basel, Baselstadt, Ch
    Drove the execution of best-in-class vision for compliant patient advocacy organization engagement.Built trust and relationships with patient advocacy organization partners through transparent communications and innovative program support, including sponsorships, grants and highly strategic industry collaborations.Facilitated informed decision making on gene therapy.
    View
  • Global Genes
    Vice President, Engagement Programs
    Global Genes Mar 2020 - Oct 2020
    Washington, 20005, Us
    Hired to grow engagement team, expand global footprint, increase impact of member organizations, and develop innovative evidence-based programming. Then… COVID. Shifted strategy to lead engagement team through the pandemic by fostering unique opportunities for community connection and support. Helped members navigate challenges of isolation, fundraising, first-time virtual events and protecting research progress.
    View
  • Foundation For Cell & Gene Medicine Education
    Program Director
    Foundation For Cell & Gene Medicine Education Apr 2017 - Mar 2020
    Launched this start-up nonprofit overseeing Communications, Patient Engagement / Advocacy, Programs and Development.Chief architect of global “Healing Genes” educational initiative designed to increase awareness and understanding of cell and gene technologies as transformative medicines among multiple stakeholders. Helped secure launch funding, assemble Board and committees, engage and learn from patient groups, and create signature programming including:- “Speaking of Genes” Nomenclature Consensus Summit- Health Economic Impact Program- State Rare Disease Education Initiative (STRiDE).
  • Conduit Health Communications Llc
    President | Founder
    Conduit Health Communications Llc Apr 2008 - Mar 2020
    Strategic communications and advocacy advisor to start-up biotechs and some of the world’s leading life sciences and healthcare organizations. Built and championed thriving network of 100+ health communications, advocacy, public relations, and marketing freelancers as the “gig worker” trend took shape.Expert at business development and multi-layer program management.
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  • Gsk
    Director, Global Product Communications Strategy, Neuroscience R&D
    Gsk Aug 2002 - Apr 2008
    Brentford, Middlesex, Gb
    Developed pioneering disease awareness, patient advocacy, engagement, issue education and communications programs in support of multiple pipeline programs and commercialized medicines. Led communications around data announcements and deals.
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  • West Glen Communications
    Vice President, Account Director
    West Glen Communications Feb 1999 - Aug 2002
    New York, Ny, Us
    Helped organizations reach hundreds of millions of people with health education content through broadcast media. Specialized in nonprofit PSA campaigns that achieved record ROI for clients.
    View
  • Dragonette, Inc. Marketing & Communications (Acquired By Gci Group)
    Vice President
    Dragonette, Inc. Marketing & Communications (Acquired By Gci Group) Aug 1995 - Feb 1999
    Leader of launch teams for medicines that became blockbusters at the dawn of DTC marketing. Promoted from Account Supervisor to Group Supervisor to Vice President.

Susan Brisendine (Sikora) Education Details

  • Central Michigan University
    Central Michigan University
    Marketing

Frequently Asked Questions about Susan Brisendine (Sikora)

What company does Susan Brisendine (Sikora) work for?

Susan Brisendine (Sikora) works for Nephcure

What is Susan Brisendine (Sikora)'s role at the current company?

Susan Brisendine (Sikora)'s current role is Vice President, Partnerships and Innovation.

What schools did Susan Brisendine (Sikora) attend?

Susan Brisendine (Sikora) attended Central Michigan University.

Who are Susan Brisendine (Sikora)'s colleagues?

Susan Brisendine (Sikora)'s colleagues are Emily Pereira, Jerry Willis, Melissa Mankey, Devon Londono, Danang Indrajita, Joe Ewer, Nazia Hussain.

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