Suzanne Robotti Email and Phone Number
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I started MedShadow Foundation in 2013 because of the life-altering impact of a medicine - DES (diethylstilbestrol)- that was given to my mother when she was pregnant with me. At age 13, I learned that I would not ever be able to get pregnant because of the side effects of DES. Although the FDA told doctors to stop prescribing DES to pregnant women in 1971, but between five and 10 million pregnant women had already been given it. The drug's long term effects on DES daughters/sons, grandchildren and future generations - rare cancers, reproductive issues, autoimmune disorders, anxiety and depression - have been studied but often unknown.While I’ll take medicine when I need to, but because of DES, I’m extra cautious. Instead, I pay close attention to eating whole foods and exercising regularly so that my immune system and my body are healthy. Not taking any drugs (when possible) is the best way to avoid harmful side effects.Because of my work with MedShadow, I’ve learned a lot about how the FDA approves drugs. In 2017 I applied to and was appointed to the FDA Advisory Committee on Drug Safety and Risk Management. I joined a panel of doctors and pharmacists as the lone consumer representative. I’m so gratified to have a seat at the table when the FDA is deciding if a drug is safe and effective enough to approve.
Medshadow Foundation (Medshadow.Org And Desaction.Org)
View- Website:
- medshadow.org
- Employees:
- 11
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Founder, PresidentMedshadow Foundation (Medshadow.Org And Desaction.Org) Sep 2012 - PresentNycFormed MedShadow Foundation, the parent company of two nonprofits, MedShadow (2012) and DES Action USA (acquired in 2015). MedShadow’s mission is to inform the public on the side effects, risks and benefits of prescription and OTC medications. DES Action (founded in 1978) educates, empowers and advocates for the millions of women who were given DES in pregnancy in the 1950s, 60s and early 70s. The world’s first synthetic estrogen, DES was thought to prevent miscarriage and early labor. It did neither and instead left the mother, her child and subsequent generations (estimated at 5 million people in 2015) at risk for rare cancers and other serious medical conditions. MedShadow Foundation is a 501c3 nonprofit organization and accepts no advertising or monetary support from pharmaceutical companies or healthcare provider organizations. -
Fda Drug Safety And Risk Management Advisory Committee Consumer RepresentativeFda Feb 2017 - PresentWashington D.C. Metro AreaThe committee advises the Federal Drug Administration commissioner on risk management, risk communication, and quantitative evaluation of adverse event reports for drugs for which the FDA has regulatory responsibility. The Committee also advises the Commissioner of Food and Drugs regarding the scientific and medical evaluation of all information gathered by the Department of Health and Human Services and the Department of Justice with regard to safety, efficacy, and abuse potential of drugs or other substances, and recommends actions to be taken by the Department of Health and Human Services with regard to the marketing, investigation, and control of such drugs or other substances.Committee MembershipThe Committee shall consist of a core of 11 voting members including the Chair. Members and the Chair are selected by the Commissioner or designee from among authorities knowledgeable in risk communication, risk management, drug safety, medical, behavioral, and biological sciences as they apply to risk management, and drug abuse. The core of voting members may include one technically qualified member, selected by the Commissioner or designee, who is identified with consumer interests and is recommended by either a consortium of consumer-oriented organizations or other interested persons. In addition to the voting members, the Committee may include one non-voting member who is identified with industry interests. -
Co-Chair Transportation Comm, (2019), Co-Chair Communications Comm (2015-18) Vice Chair (2013-15)Community Board 7 2011 - PresentGreater New York City AreaCommunity Board 7/Manhattan is part of local New York City government and plays an important advisory role in dealing with multiple community concerns of Manhattan’s Upper West Side. Committee participation includes: Business-Consumer Issues (2012-present), Steering (2011-present), Housing (2010-present), Park & Environment (2010-2012)
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TrusteeSpringfield College Jul 2016 - Jun 2024Springfield, Massachusetts -
Advisory Board, Masters In PublishingPace University 2008 - Apr 2024Greater New York City AreaAdvisor to Pace University’s Master of Science degree in Publishing Program, providing professional insight and guidance ensuring curriculum was in alignment with rapidly changing publishing industry needs and digital technology. -
Board Member, Nyc Westside YmcaYmca Jan 2010 - Jan 2014Greater New York City AreaThe Board of Directors serve as champions in support of the West Side YMCA’s mission, goals, and directives through leadership, advisement, financial support, and advocacy. -
Community Advisory BoardMount Sinai Hospital Jan 2008 - Nov 2013Long Island City, Queens -
Roles Included Board President, Vice President, Fundraising Chair And Marketing ChairVariety Boys & Girls Club 2001 - 2013Long Island City, NyVariety Boys & Girls Club of Queens is the largest after-school program in Western Queens. The Club functions as a neighborhood anchor, offering children a safe haven to learn, play, and grow into tomorrow's leaders.
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Marketing ConsultantConsumer Products 1999 - 2009Clients included: Every Woman magazine, Environmental First Search, Hasco/GrowingFamily.com, Beehive Bee Products
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Publisher/OwnerBaby Publishing, Llc Jan 1990 - Feb 1999Greater New York City Area•Created and launched a specialty publishing company targeting expectant and new mothers as well as childbirth educators. Publications were distributed through unique channels including diaper service, hospital (newborn care pack) and childbirth instructors• Raised investment capital, sold advertising to blue chip brands (American Home Products, Pfizer, Kimberly Clark), negotiated printing, distribution and Internet contracts, hired and managed staff•Sold Baby Publishing, LLC to Gruner+ Jahr Bertelsmann, the global publishing company
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Regional Advertising Manager/Territory ManagerAmerican Baby Group 1982 - 1990Greater New York City AreaMaintained and increased advertising sales for magazine publisher targeting expectant and new mothers
Suzanne Robotti Skills
Suzanne Robotti Education Details
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Communications
Frequently Asked Questions about Suzanne Robotti
What company does Suzanne Robotti work for?
Suzanne Robotti works for Medshadow Foundation (Medshadow.org And Desaction.org)
What is Suzanne Robotti's role at the current company?
Suzanne Robotti's current role is MedShadow Foundation Founder I FDA Consumer Representative I Speaker I Drug Side Effects Expert I Medication Risks & Benefits I DES Daughter.
What is Suzanne Robotti's email address?
Suzanne Robotti's email address is su****@****aol.com
What is Suzanne Robotti's direct phone number?
Suzanne Robotti's direct phone number is +121236*****
What schools did Suzanne Robotti attend?
Suzanne Robotti attended University Of Maryland College Park.
What skills is Suzanne Robotti known for?
Suzanne Robotti has skills like Fundraising, Publishing, Advertising, Marketing, Strategic Communications, Social Media, Public Speaking, Blogging, Magazines, Social Media Marketing, Editing, Public Relations.
Who are Suzanne Robotti's colleagues?
Suzanne Robotti's colleagues are Garnell Bradley, Dante Steward, Mba.
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