As a registered charity, Burning Nights CRPS Support, is working to improve the lives of all those affected by Complex Regional Pain Syndrome (CRPS) not just those living with the condition but their families and caregivers. We provide support, raise awareness and educate people about the debilitating condition; CRPS. CRPS is a life-changing and poorly recognised pain condition. The organisation I founded, Burning Nights CRPS Support, is a UK registered charity dedicated to CRPS (Charity No… Show more As a registered charity, Burning Nights CRPS Support, is working to improve the lives of all those affected by Complex Regional Pain Syndrome (CRPS) not just those living with the condition but their families and caregivers. We provide support, raise awareness and educate people about the debilitating condition; CRPS. CRPS is a life-changing and poorly recognised pain condition. The organisation I founded, Burning Nights CRPS Support, is a UK registered charity dedicated to CRPS (Charity No. 1166522)We provide in-service awareness training on all areas of Complex Regional Pain Syndrome to healthcare professionals such as OTs, physiotherapists, chiropractors, musculoskeletal staff, nurses, midwives, students, student doctors, GPs & doctors. We also provide sessions for legal professionals, case managers, schools and universities.As a charity we offer a dedicated CRPS Counselling & Therapy Service, a Befriending Scheme, we hold regular online support groups, support via Live Chat, an annual national conference, an information & support phone line, an online community forum, email & social media support & access to legal support.Providing Disability Awareness training and talks for any company, organisation or community whether they be large or small, everybody needs to be aware of all aspects of disability, CRPS and chronic pain.We can provide written articles, blogs and interviews for newspapers, journals, magazines, columns on the topics of CRPS, chronic pain, disability and disability awareness.Please visit our evidence based website - Burning Nights CRPS Support to raise awareness and provide detailed up-to-date information about all aspects of CRPS: www.burningnightscrps.org Show less

After training as a barrister, a minor accident at work aged 24 caused Victoria to be diagnosed with a poorly understood condition, Complex Regional Pain Syndrome (CRPS). Victoria experienced a range of extremely painful symptoms including severe burning pain in her lower leg & a sharp stabbing sensation of ice picks pushed into the skin & bone. The sleepless nights & fear of the future led to severe depression.Aside from the physical and mental pain, a severe part of the torture was… Show more After training as a barrister, a minor accident at work aged 24 caused Victoria to be diagnosed with a poorly understood condition, Complex Regional Pain Syndrome (CRPS). Victoria experienced a range of extremely painful symptoms including severe burning pain in her lower leg & a sharp stabbing sensation of ice picks pushed into the skin & bone. The sleepless nights & fear of the future led to severe depression.Aside from the physical and mental pain, a severe part of the torture was the judgemental attitudes, often being told that the pain was "all in her head". After the development of ulcers leading to total skin breakdown & life-threatening septicaemia, in 2006, Victoria had her leg amputated above the knee aged just 27. Even though Victoria attempted to rehabilitate onto a prosthetic this proved impossible due to the CRPS in her remaining stump. Victoria tried to continue as best she could. Unfortunately after years of having bouts of pneumonia Victoria was given less than 20% chance of survival after catching Swine Flu & 5 types of pneumonia in both her lungs. Victoria knows she is lucky to be alive.In 2014, Victoria received more devastating news – the CRPS had spread to her one & only remaining leg. Just 9 months after being diagnosed with CRPS Victoria had her 2nd above knee amputation aged 35.When Victoria was told there were limited options left, she decided to put her inspirational story to good use. Victoria set up a website to promote the awareness of Complex Regional Pain Syndrome. Burning Nights CRPS Support became a registered charity in April 2016 & Victoria was awarded Inspirational Woman of the Year 2016 by Aspire Magazine.Victoria now regularly speaks at various conferences, seminars, universities and hospitals with the hope of raising awareness of CRPS through her story & is trying to ensure others don't go through what Victoria has gone through. Victoria also speaks about the condition in general. Show less

As Chair of The Patient Voice Committee (TPVC) at the British Pain Society, I work with a group of people with lived experience of chronic pain and pain professionals supporting the overall work of The British Pain Society, focusing on raising the voice of people affected by chronic pain.

I am currently writing my Autobiography to share my inspirational story of life why a rare and complicated chronic condition, Complex Regional Pain Syndrome (CRPS).I designed my own website raising awareness of Complex Regional Pain Syndrome that I’ve had since a seemingly simple accident at work in November 2003.You can find the website at www.burningnightscrps.orgI have also authored my first journal article on Skin Complications Of Complex Regional Pain Syndrome that you can… Show more I am currently writing my Autobiography to share my inspirational story of life why a rare and complicated chronic condition, Complex Regional Pain Syndrome (CRPS).I designed my own website raising awareness of Complex Regional Pain Syndrome that I’ve had since a seemingly simple accident at work in November 2003.You can find the website at www.burningnightscrps.orgI have also authored my first journal article on Skin Complications Of Complex Regional Pain Syndrome that you can find in Wounds U.K. journal Vol 14 | No 5 | November 2018. Please see the link to the article at the bottom of my profile. Show less

I was Head of Law for Southport College on 2 occasions - the 1st being January - June 2003 and then again July 2005 - January 2006.I lectured law AS and A2 level as well as ILEX Level 3 and 4 (criminal and civil law). I also taught Legal Secretaries at NVQ level 3.During my times at Southport I received an Outstanding report from my Head of A-Levels ie my manager and also received an outstanding during an OFSTED inspection after teaching for only 5 weeks.