Batten disease, or neuronal ceroid lipofuscinosis (NCL), is a family of rare, genetic, progressive neurological disorders that primarily affect children. Children with Batten disease are typically born healthy and reach normal developmental milestones for a period of time before symptoms begin to appear. As the disease progresses, children typically suffer seizures, language decline, vision loss, cognitive and motor decline, childhood dementia and premature death, typically between late childhood and early adulthood.
Founded in 1995 by parents of children affected by Batten disease, BDSRA Australia is dedicated to improving the well-being of children, young people and families affected by Batten disease in Australia through its three main objectives:
1) providing practical support to families affected by Batten disease
2) funding vital research towards treatments and cures
3) advancing education and awareness of Batten disease in Australia
We rely on generous donations from the public to fund our programs and services. Find out how you can help turn HOPE into a CURE by visiting our website at https://bdsraaustralia.org
Company Details
- Employees
- 10
- Founded
- -
- Address
- Sydney, Au
- Industry
- Non-Profit Organizations
- Website
- https://bdsraaustralia.org
- Keywords
- Batten disease, neuronal ceroid lipofuscinosis, rare disease, neurodegenerative disease, childhood dementia.
- HQ
- Sydney
- Competitors
- Health Literacy Now, Critical Success Solutions, BDSRA Foundation, Lysosomal Storage Disorders Support Society (LSDSS) - India, Resilient Healthcare Solutions, GHF- Golden Heart Flower, Batten Disease Family Association, Lipoedema Australia, Infinite Aged Care, Vanguard Clinical Rare Disease Foundation.
Batten Disease Support & Research Association (Bdsra) Australia Questions
Batten Disease Support & Research Association (Bdsra) Australia's website is https://bdsraaustralia.org
Batten Disease Support & Research Association (Bdsra) Australia's LinkedIn profile is https://au.linkedin.com/company/bdsra-australia
Batten Disease Support & Research Association (Bdsra) Australia has
10 employees.
View email and phone details for 10
employees at Batten Disease Support & Research Association (Bdsra) Australia.
Batten Disease Support & Research Association (Bdsra) Australia's industry is
Non-profit Organizations
Batten Disease Support & Research Association (Bdsra) Australia's top competitors are
Health Literacy Now,
Critical Success Solutions,
Bdsra Foundation,
Lysosomal Storage Disorders Support Society (Lsdss) - India,
Resilient Healthcare Solutions,
Ghf- Golden Heart Flower,
Batten Disease Family Association,
Lipoedema Australia,
Infinite Aged Care,
Vanguard Clinical Rare Disease Foundation.
Batten Disease Support & Research Association (Bdsra) Australia's categories are Non-profit Organizations
Batten Disease Support & Research Association (Bdsra) Australia's founding year is 1995
