ConnectMyVariant.org

We are a health-focused nonprofit organization that helps individuals and families with hereditary disease, such as cancer risk, in their early detection and prevention efforts. We provide unique value by leveraging our evidenced-based family connection protocols to help people identify other at-risk relatives and help those relatives access genetic testing and tailored preventative medical care. We bring people with the same genetic risk together through our variant database and community engagement events to share experiences, find common ancestors, and help each other get the best medical care. ConnectMyVariant also works to increase awareness of the benefits of family outreach among physicians, others who provide prevention care, and the broader genealogy community. Key activities include: Working with patients to implement personalized family outreach plans; Providing interactive educational workshops that train patients to talk to relatives about inherited disease risk; Helping organize variant specific family reunions to share prevention stories and plan outreach to cousins. Providing assistance to help connect individuals in variant groups, including equity and inclusion grants for family and community outreach. When hereditary disease risk is known, family outreach has been proven to be the most effective and cost-effective intervention for early detection and prevention. It is recommended by multiple guidelines. Despite overwhelming evidence, family outreach assistance is not reimbursed by insurance or integrated into healthcare. For example, many people suffer and die from hereditary cancer that could have been prevented or caught early. Family outreach for many other hereditary diseases has similar prevention benefits. Our strategies are cost- effective and are 25-50x more effective than cancer prevention education and outreach interventions to the general population. Donate to ConnectMyVariant: https://www.every.org/connectmyvariant?utm_campaign=donate