CPN is a nonprofit organization that provides curated digital resources and programming to help caregivers navigate the illness journey with support and a sense of community. At the center of CPN are parent and clinician voices that illuminate and share the lived family experience, focusing on social, functional, and emotional needs and the positive impact of “palliative-aware” practices, regardless of diagnosis and without bias.
CPN resources include video and podcast interviews, educational guides and learning path- ways, parent-generated blogs, and a clinician portal offering materials for use in self- and colleague education. CPN’s programming includes a robust social media presence, monthly educational webinars and newsletters and both live and virtual presentations to clinician audiences, biotech leaders, and patient organizations. CPN partners with others to bring the family perspective to clinical research and a wide range of communication (or media) outlets.
CPN staff also presents at family and industry conferences, and at pediatric hospital Grand Rounds. For more information visit CourageousParentsNetwork.org and email us at connect@courageousparentsnetwork.org
Company Details
- Employees
- 18
- Founded
- -
- Address
- Newton, Ma, Us
- bl****@****ork.org
- Industry
- Hospitals And Health Care
- NAICS
-
Health Care and Social AssistanceSocial Assistance
- Website
- courageousparentsnetwork.org
- Keywords
- rare disease, pediatric, palliative care, family support, rare disease, caregiver, sibling support, neurodegenerative, clinical education, special needs, clinical trial, resiliency, anticipatory grief, parent bereavement, parenting, parenting, feeding tube, decision making, Tracheostomy, pediatric palliative care, psycho-social, physician resources, well-being, nonprofit, spinal fusion.
- HQ
- Newton, MA
Courageous Parents Network Questions
Courageous Parents Network's website is courageousparentsnetwork.org
Courageous Parents Network's LinkedIn profile is https://www.linkedin.com/company/courageous-parents-network
Courageous Parents Network has
18 employees.
View email and phone details for 18
employees at Courageous Parents Network.
Courageous Parents Network's industry is
Hospitals and Health Care
Courageous Parents Network's top competitors are
Everylife Foundation For Rare Diseases,
Child Neurology Foundation,
Standwithus,
National Organization For Rare Disorders,
Starlight Children's Foundation,
Make-A-Wish America,
Ultragenyx,
Global Genes,
Rare Revolution Magazine,
Rare Disease Advisor.
Courageous Parents Network's support email address is blord@courageousparentsnetwork.org
Courageous Parents Network's categories are Hospitals and Health Care
Courageous Parents Network's founding year is 2014
