The CSF Leak Association is a UK-based registered charity
working to raise awareness of cerebrospinal fluid (CSF) leaks and secure clear and consistent treatment pathways within the NHS. We also aim to provide support and advice for sufferers, their families and supporters, and a resource for the medical profession.
A CSF leak is a serious and often incapacitating medical condition stemming from a tear or hole in the membrane that contains the fluid surrounding the spinal cord and brain. It can occur in the head or spine as result of trauma, surgery, an underlying disorder or spontaneously.
When fluid leaks out, cranial pressure and volume reduces (known as intracranial hypotension) which allows the brain to sag within the skull. As a result of this ‘brain sag’, sufferers often experience severe and unrelenting head pain, pressure, visual disturbances, hearing impairment, tinnitus, spasms, seizures and a wide range of other symptoms.
Research shows that at least 5 in 100,000 people each year are affected by spontaneous CSF leaks, with many more suffering from iatrogenic or traumatic CSF leaks. They are not rare, yet are generally under-diagnosed; misdiagnosis of migraine, sinusitis and other headache disorders is common place, and on average correct diagnosis takes 13 months from onset.
Whatever the circumstances and severity of the symptoms, a CSF Leak is painful, debilitating and life-changing. There is very little awareness amongst the general public and very little support for those in need.
Company Details
- Employees
- 5
- Founded
- -
- Address
- Glasgow, Gb
- Industry
- Non-Profit Organizations
- Website
- csfleak.info
- Keywords
- Cerebrospinal Fliud Leak, Intracranial Hypotension, CSF Leak, Spinal Headache, Post-Dural Puncture Headache, Low Pressure Syndrome, Charity, Health Advocacy, Non-Profit, Third Sector.
- HQ
- Glasgow
- Competitors
- UC Davis Health Department of Anesthesiology and Pain Medicine, Action for BPAN, The Ehlers-Danlos Society, ACTA2 Alliance, SDSUK, Ehlers-Danlos National Foundation (EDNF), Spinal CSF Leak Australia, Spinal CSF Leak Canada Charitable Organization, Hydrocephalus Clinical Research Network (HCRN), Spinal CSF Leak Foundation.
Csf Leak Association Questions
Csf Leak Association's website is csfleak.info
Csf Leak Association's LinkedIn profile is https://uk.linkedin.com/company/csfleakassociation
Csf Leak Association has
5 employees.
View email and phone details for 5
employees at Csf Leak Association.
Csf Leak Association's industry is
Non-profit Organizations
Csf Leak Association's top competitors are
Uc Davis Health Department Of Anesthesiology And Pain Medicine,
Action For Bpan,
The Ehlers-Danlos Society,
Acta2 Alliance,
Sdsuk,
Ehlers-Danlos National Foundation (Ednf),
Spinal Csf Leak Australia,
Spinal Csf Leak Canada Charitable Organization,
Hydrocephalus Clinical Research Network (Hcrn),
Spinal Csf Leak Foundation.
Csf Leak Association's categories are Non-profit Organizations
Csf Leak Association's founding year is 2016
