The Children's Tumour Foundation

The Children's Tumour Foundation of Australia is a not-for-profit organisation dedicated to providing information, resources and support services to children, their families and adults living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2 and Schwannomatosis. Neurofibromatosis (NF) is a group of three genetic conditions which gives rise to the potential for benign tumours to grow on nerves anywhere in the body. NF also affects the development of other systems and tissues including; the cardiovascular system, bones, skin, brain, eyes, respiratory system, gastrointestinal tract and hormonal system. This common genetic condition affects 1 in 2500 Australians, and currently there is no cure and few treatment options. The CTF also raises funds to support promising medical research aimed at finding new treatments and ultimately a cure for NF.