Eb Research Partnership

Eb Research Partnership company information, Employees & Contact Information

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening genetic skin disorders that affect children from birth. We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. EB Research Partnership utilizes an innovative business model of venture philanthropy, leveraging concepts from principal investing and applying them towards achieving philanthropic goals. When we make a grant to a research project, we retain the added upside of generating a recurring donation stream if the therapy or product is commercially successful. We then use this revenue to fund additional EB research. Join us and learn more at: www.ebresearch.org
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News

EB Research Partnership Rings The Opening Bell® at The New York Stock Exchange to Shine Global Spotlight on Epidermolysis Bullosa - PR Newswire

EB Research Partnership Rings The Opening Bell® at The New York Stock Exchange to Shine Global Spotlight on Epidermolysis Bullosa PR Newswire

Dozens join in memorial walk for Elliana Campbell - Spectrum News

Dozens join in memorial walk for Elliana Campbell Spectrum News

Daphne Vivien Arnold Obituary December 1, 2024 - Timothy A. Berkebile Funeral Home, Inc.

Daphne Vivien Arnold Obituary December 1, 2024 Timothy A. Berkebile Funeral Home, Inc.

Landmark victory for individuals living with DEB and their families, the FDA announced their approval of Krystal Biotech’s VYJUVEK™ for the treatment of Dystrophic Epidermolysis Bullosa (DEB). - Business Wire

Landmark victory for individuals living with DEB and their families, the FDA announced their approval of Krystal Biotech’s VYJUVEK™ for the treatment of Dystrophic Epidermolysis Bullosa (DEB). Business Wire

Krystal Biotech Receives Equity-Based Award from EB Research Partnership and EB Medical Research Foundation - Krystal Biotech, Inc

Krystal Biotech Receives Equity-Based Award from EB Research Partnership and EB Medical Research Foundation Krystal Biotech, Inc

Epidermolysis Bullosa: Treatment Challenges and Emerging Developments - Dermatology Advisor

Epidermolysis Bullosa: Treatment Challenges and Emerging Developments Dermatology Advisor

VIDEO: Alki throng joins Jill and Eddie Vedder at ‘Plunge for Patterson’ on behalf of EB research, awareness - West Seattle Blog...

VIDEO: Alki throng joins Jill and Eddie Vedder at ‘Plunge for Patterson’ on behalf of EB research, awareness West Seattle Blog...

EB Research Partnership and EB Research Foundation Join - GlobeNewswire

EB Research Partnership and EB Research Foundation Join GlobeNewswire

Hallie Grace Davis - Fox & Weeks

Hallie Grace Davis Fox & Weeks

Jelly Roll, Post Malone, Eddie Vedder to play 'Reportin' For Duty' concert in Middle Tennessee - The Tennessean

Jelly Roll, Post Malone, Eddie Vedder to play 'Reportin' For Duty' concert in Middle Tennessee The Tennessean

Jill and Eddie Vedder gathered good people for a good cause on Alki Beach - Westside Seattle

Jill and Eddie Vedder gathered good people for a good cause on Alki Beach Westside Seattle

Mariners and Padres Will Officially Play for “Vedder Cup” Beginning in 2025 - marinersblog.mlblogs.com

Mariners and Padres Will Officially Play for “Vedder Cup” Beginning in 2025 marinersblog.mlblogs.com

New Eddie Vedder Solo Shows in Seattle - Grateful Web

New Eddie Vedder Solo Shows in Seattle Grateful Web

Sharing Sophia’s ‘Grace’ And ‘Hope’ Along Connecticut Trails - The Newtown Bee

Sharing Sophia’s ‘Grace’ And ‘Hope’ Along Connecticut Trails The Newtown Bee

John Jeffries Obituary (1930 - 2024) - Everett, PA - The Valley News Dispatch - Legacy obituary

John Jeffries Obituary (1930 - 2024) - Everett, PA - The Valley News Dispatch Legacy obituary

Apparently There’s a Guitar Trophy Designed by Eddie Vedder for When These Two MLB Teams Play Each Other - Loudwire

Apparently There’s a Guitar Trophy Designed by Eddie Vedder for When These Two MLB Teams Play Each Other Loudwire

Macklemore, Lamorne Morris, Keanu Reeves, and Emma Watson join Jill and Eddie Vedder, and more, for a virtual benefit show support for EB Research Partnership's mission to find a cure for Epidermolysis Bullosa - PR Newswire Canada

Macklemore, Lamorne Morris, Keanu Reeves, and Emma Watson join Jill and Eddie Vedder, and more, for a virtual benefit show support for EB Research Partnership's mission to find a cure for Epidermolysis Bullosa PR Newswire Canada

EB Research Partnership and Jill and Eddie Vedder raised over $5M to benefit life-saving rare disease research - PR Newswire

EB Research Partnership and Jill and Eddie Vedder raised over $5M to benefit life-saving rare disease research PR Newswire

EBRP, EBRF and other Global EB Charities Collaborate to Announce $1 Million Award for EB Simplex - GlobeNewswire

EBRP, EBRF and other Global EB Charities Collaborate to Announce $1 Million Award for EB Simplex GlobeNewswire

The War and Treaty, Charlie Puth honor 'Friends' star Perry at 75th Primetime Emmy Awards - The Tennessean

The War and Treaty, Charlie Puth honor 'Friends' star Perry at 75th Primetime Emmy Awards The Tennessean

MARY AMATO Obituary (2017) - Bedford, MA - Boston Globe - Legacy obituary

MARY AMATO Obituary (2017) - Bedford, MA - Boston Globe Legacy obituary

Billy Talent Return Home For The Summer - live in limbo

Billy Talent Return Home For The Summer live in limbo

12-year-old with rare disease welcomes his new assistance dog - SILive.com

12-year-old with rare disease welcomes his new assistance dog SILive.com

Benefit to be held for 13-year-old with rare disease - SILive.com

Benefit to be held for 13-year-old with rare disease SILive.com

Eddie Vedder And Celebrity Friends Come Together For Venture Into Cures - looktothestars.org

Eddie Vedder And Celebrity Friends Come Together For Venture Into Cures looktothestars.org

Partnership puts spotlight on rare disease - afc.com.au

Partnership puts spotlight on rare disease afc.com.au

Crows announce new charity partnership - afc.com.au

Crows announce new charity partnership afc.com.au

Billy Talent - Y108

Billy Talent Y108

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