ECHDO

The European Congenital Heart Disease Organisation works for Congenital Heart Disease (CHD) patients of all ages. Eight in every 1000 babies are born with a heart defect, and other children acquire a heart problem as they grow up. ECHDO works for CHD patients of all ages, gaining knowledge from parents of children with CHD and from adult patients to achieve common goals. As increasing numbers of heart children survive into adulthood, ECHDO members include both parent support groups and support organisations with a focus on GUCHs. ECHDO members have a wealth of experience in overcoming the challenges facing new, growing and long-established support organisations, including raising funds, registering as a legal body, organising volunteers and staff, setting up events, lobbying and running campaigns. Within the network, members exchange resources to raise awareness and understanding of CHD and they collaborate on events including summer camps for young people. 👉Donate via PayPal here: https://www.paypal.com/donate/?hosted_button_id=GHUFQGDUK4MJ4