Emily's Entourage (EE) is an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from existing mutation-targeted therapies. CF is a fatal genetic disease primarily affecting the lungs and digestive system. Founded by Emily Kramer-Golinkoff, a woman with advanced stage CF, and her devoted friends and family, the organization has been featured in national media, including the New York Times, STAT, CNN, People, and more.
Since 2011, Emily’s Entourage has awarded millions of dollars in research grants, launched a now-acquired CF gene therapy company, developed a patient registry and clinical trial matchmaking program to accelerate clinical trial recruitment, and led worldwide efforts to drive high-impact research and drug development. The organization’s work is particularly critical now as revolutionary breakthroughs are available for roughly 90% of the CF population, but those in the outlying 10% that unfortunately do not benefit from these major advances. The work of EE is laser-focused on changing that — and doing it fast, so nobody is left behind
Company Details
- Employees
- 18
- Founded
- -
- Address
- Po Box 71, Merion Station,pa 19066,united States
- Industry
- Research Services
- NAICS
-
Scientific Research and Development ServicesResearch and Development in the Physical, Engineering, and Life SciencesResearch and Development in the Physical, Engineering, and Life Sciences (except Nanotechnology and Biotechnology)
- Website
- emilysentourage.org
- Keywords
- Cystic Fibrosis, Fundraising, Personalized Medicine, Healthcare Improvement, Innovative Drug Therapy, Grant Funding, Clinical Trials, Publications, Lobbying.
- HQ
- Merion Station, PA
Emily's Entourage Questions
Emily'S Entourage's website is emilysentourage.org
Emily'S Entourage's LinkedIn profile is https://www.linkedin.com/company/emilysentourage
Emily'S Entourage has
18 employees.
View email and phone details for 18
employees at Emily'S Entourage.
Emily'S Entourage's industry is
Research Services
Emily'S Entourage's top competitors are
Vertex Pharmaceuticals,
Cystic Fibrosis Research Institute,
Viatris,
Cystic Fibrosis Foundation,
Bioharmony Therapeutics,
Pcd Support Uk,
Krystal Biotech, Inc.,
Cystic Fibrosis Trust,
Aequitas Partners,
Boomer Esiason Foundation.
Emily'S Entourage's categories are Research Services
Emily'S Entourage's founding year is 2011
