ERN ReCONNET is the European Reference Network on Connective Tissue and Musculoskeletal Diseases.
The main aim is to improve the management of rare connective tissue and musculo-skeletal diseases (rCTDs) across the EU. The main objectives of ERN ReCONNET are:
- Realisation of the potential of European cooperation among rCTDs stakeholders, by providing a stable and fully functioning European infrastructure on rCTDs
- Provision of highly-specialised care for rCTDs patients and promotion of improvements in the cost-effective delivery of diagnosis, management and monitoring of rCTDs patients
- Pooling, advancing and exchanging of knowledge and information on rCTDs by providing training and education for rCTDs stakeholders and by facilitating the mobility of expertise
- Stimulating and encouraging collaborative patient-centered research in rCTDs
- Promoting the empowerment and the involvement of rCTDs patients in the rCTDs community.
ERN ReCONNET currently covers the following rCTDs:
- Antiphospholipid syndrome (APS)
- Ehlers-Danlos syndromes (EDS)
- Idiopathic inflammatory myopathies (IIM)
- IgG4-related diseases (IgG4)
- Mixed connective tissue diseases (MCTD)
- Relapsing polychondritis (RP)
- Sjögren’s syndrome (SS)
- Systemic lupus erythematosus (SLE)
- Systemic sclerosis (SSc)
- Undifferentiated connective tissue diseases (UCTD)
The ERN ReCONNET is a multi-stakeholder infrastructure which serves as a meeting point of needs, feedbacks and expertise for HCPs, patients, families and for other stakeholders involved in rCTDs.
Currently, it involves 64 Healthcare Providers: 55 Full Members and 9 Affiliated Partners (APs) over 23 European countries: Austria, Belgium, Croatia, Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Italy, Latvia, Lithuania, Luxembourg, Malta, Poland, Portugal, Romania, Slovenia, Spain, Sweden, and The Netherlands.
ERN ReCONNET established active partnerships with patients’ representatives (ePAG Advocates).
Company Details
- Employees
- 8
- Founded
- -
- Address
- Via Roma, 67, Pisa,tuscany 56126,italy
- Industry
- Hospitals And Health Care
- NAICS
-
Health Care and Social AssistanceSocial Assistance
- Website
- https://reconnet.ern-net.eu/
- HQ
- Pisa, Tuscany
- Competitors
- ERN GUARD-Heart, Federation of European Scleroderma Associations, ERN ITHACA, ERN-RITA, ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases), ERN RARE-LIVER, ERN BOND - European Reference Network on Rare Bone Diseases, ERNICA, ERN-RND, European Reference Network for Rare Neurological Diseases, ERN eUROGEN.
Ern Reconnet Questions
Ern Reconnet's website is https://reconnet.ern-net.eu/
Ern Reconnet's LinkedIn profile is https://it.linkedin.com/company/ern-reconnet
Ern Reconnet has
8 employees.
View email and phone details for 8
employees at Ern Reconnet.
Ern Reconnet's industry is
Hospitals and Health Care
Ern Reconnet's top competitors are
Ern Guard-Heart,
Federation Of European Scleroderma Associations,
Ern Ithaca,
Ern-Rita,
Ern-Eurobloodnet (European Reference Network On Rare Hematological Diseases),
Ern Rare-Liver,
Ern Bond - European Reference Network On Rare Bone Diseases,
Ernica,
Ern-Rnd, European Reference Network For Rare Neurological Diseases,
Ern Eurogen.
Ern Reconnet's categories are Hospitals and Health Care
Ern Reconnet's founding year is 2017
