EURO-NMD European Reference Network for Rare Neuromuscular Diseases
Hospitals And Health Care
Paris, Fr
11 employees
- Employees
- 11
- Contacts
- 3
- Emails
- 3
EURO-NMD European Reference Network for Rare Neuromuscular Diseases Overview
- Headquarters
- Paris, Fr
- Website
- ern-euro-nmd.eu
- Industry
- Hospitals And Health Care
- Employees
- 11
- Founded
- 2017
- NAICS
-
Health Care and Social AssistanceSocial Assistance
About EURO-NMD European Reference Network for Rare Neuromuscular Diseases
EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related disorders that represent a major cause of mortality and lifelong disability in children and adults. NMDs are caused by acquired or genetic defects of motorneurons, peripheral nerves, neuromuscular junctions or skeletal muscle, resulting in muscle weakness and wasting, swallowing and breathing difficulties, and cardiac failure. NMDs collectively affect an estimated 500,000 EU citizens and result in significant costs for families and the healthcare system. EURO-NMD unites 82 of Europe’s leading NMD clinical and research centres in 25 Member States and includes highly active patient organizations. More than 150,000 NMD patients are seen annually by the ERN.
EURO-NMD European Reference Network for Rare Neuromuscular Diseases Contact Details
- People in AeroLeads
- 4
- With contact data
- 3
- Email contacts
- 3
- 75.0% coverage
EURO-NMD European Reference Network for Rare Neuromuscular Diseases Org Chart
Sample employees and titles| Name | Title | Location | Contact |
|---|---|---|---|
| Manuela Lavorato | Assistant Professor of Pediatrics | Greater Bologna Metropolitan Area, Italy |
Email
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| Antonio J Marques Atalaia | Clinical Advisor Ern-euro-nmd.eu Aphp |
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| Arabela Acalinei | Președinte Asociatia Neuro Move | Romania |
Email
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| Pek Badırgalı | A Passionate Advocate of Patient Rights | Istanbul, Türkiye, Turkey |
Email
|
Employees by Management Level
Individual contributor
3 profiles
Associate / junior
1 profile
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