As a group of volunteers, LU is dedicated to meeting our communities’ needs in the US and globally . We provide an informational website that includes education, patient stories and links to partners and research. We connect patients to each other and to physicians around the world. We provide subtype specific community advisors who assist patients with emotional support and guidance as they navigate difficult issues such as communicating with medical professionals not aware of lipodystrophy (LD) or problems with insurance. LU provides daily updates to the community via social media including new research or community awareness activities. We answer all inquiries that come our way and if we don’t have the answers, we will help you find them. In addition, we actively participate in advocacy training and partner with the greater rare disease community.
Company Details
- Employees
- 6
- Founded
- 2012
- Address
- 22 Frances Rd, Los Lunas,new Mexico 87031,united States
- Industry
- Non-Profit Organizations
- Website
- lipodystrophyunited.org
- Keywords
- Non-Profit.
- HQ
- Los Lunas, New Mexico
Lipodystrophy United Questions
Lipodystrophy United's website is lipodystrophyunited.org
Lipodystrophy United's LinkedIn profile is https://www.linkedin.com/company/lipodystrophy-united
Lipodystrophy United has
6 employees.
View email and phone details for 6
employees at Lipodystrophy United.
Lipodystrophy United's industry is
Non-profit Organizations
Lipodystrophy United's top competitors are
Arthritis Foundation,
Global Genes,
Catalyst Capital Advisors,
Warner Communications (A Millwright Agency),
Baird,
Worldwide Clinical Trials,
Cell And Gene Therapy Catapult,
Aegle Therapeutics,
Community Food Share,
Foundation For Sarcoidosis Research.
Lipodystrophy United's categories are Non-profit Organizations
Lipodystrophy United's founding year is 2012
