We envision a world with treatments and a cure for myotonic dystrophy (DM). Our mission is Community, Care, and a Cure.
We created the Myotonic Dystrophy Foundation (MDF) to enhance the quality of life of people living with myotonic dystrophy (DM) and to drive research focused on treatments and a cure. DM is an inherited disorder that can appear at any age and manifests differently in every person.
MDF is the leading global advocate helping patients and families navigate the DM disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, MDF is often the only resources and support they are able to locate.
Currently tens of thousands of people living with myotonic dystrophy, their families & friends make up the MDF community.
Based in Oakland, California, MDF partners with, and complements the work of, the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), and other governmental, academic, and philanthropic agencies.
Company Details
- Employees
- 22
- Founded
- -
- Address
- 663 13th St,
- Phone
- 86-MYOTONIC
- in****@****nic.org
- Industry
- Non-Profit Organizations
- Website
- https://www.myotonic.org/
- Keywords
- Grants, Support Groups, Patient Advocacy, Education, Medical Education, Myotonic Dystrophy, Research Grants.
- HQ
- Oakland, California
Myotonic Dystrophy Foundation Questions
Myotonic Dystrophy Foundation's helpline number is 86-MYOTONIC
Myotonic Dystrophy Foundation's website is https://www.myotonic.org/
Myotonic Dystrophy Foundation's LinkedIn profile is https://www.linkedin.com/company/myotonic
Myotonic Dystrophy Foundation has
22 employees.
View email and phone details for 22
employees at Myotonic Dystrophy Foundation.
Myotonic Dystrophy Foundation's industry is
Non-profit Organizations
Myotonic Dystrophy Foundation's top competitors are
Cure Sma,
Muscular Dystrophy Association,
Arthex Biotech,
Cure Myotonic Dystrophy Uk Charity,
Dyne Therapeutics,
Muscular Dystrophy Canada,
Day One Biopharmaceuticals,
Prinses Beatrix Spierfonds,
Avidity Biosciences, Inc.,
Stichting Md.
Myotonic Dystrophy Foundation's support email address is info@myotonic.org
Myotonic Dystrophy Foundation's categories are Non-profit Organizations
Myotonic Dystrophy Foundation's founding year is 2007
