Orsini - Rare Disease Pharmacy Solutions

Providing patients with comprehensive and compassionate care since 1987, Orsini is the leading, independent specialty pharmacy focused on rare diseases, gene therapies, and complex conditions. Orsini’s high-touch care model centers around compassionate, therapy-specific care teams who provide personalized care to patients based on their specific condition and treatment. The company’s comprehensive solutions include medication adherence programs, data analytics, customized manufacturer programs, and nationwide nursing coverage for convenient in-home infusion services. Headquartered in Elk Grove Village, IL, Orsini Specialty Pharmacy holds accreditations with the Accreditation Commission for Health Care (ACHC), The Joint Commission, URAC, NABP, and ACHC’s Distinction in Rare Diseases and Orphan Drugs. Conditions Treated Include: CLN2 Disease Molecularly Confirmed Long-Chain Fatty Acid Oxidation Disorders (LC-FAOD) Duchenne Muscular Dystrophy (DMD) Mucopolysaccharidosis (MPS) Fabry Disease Paroxysmal Nocturnal Hemoglobinuria (PNH) Growth Hormone Deficiency Pompe Disease Gaucher Disease Phenylketonuria (PKU) Hereditary Angioedema (HAE) Progressive Keratoconus Hereditary ATTR (hATTR) Spinal Muscular Atrophy (SMA) Hunter Syndrome Tardive Dyskinesia Idiopathic Pulmonary Fibrosis (IPF) X-Linked Hypophosphatemia (XLH)