Moving glioblastoma from terminal to treatable. Powered by patients. OurBrainBank is the first non-profit created by, with, and for people living with glioblastoma (GBM). GBM is an aggressive and rare brain cancer. The 5-year survival rate is 5%.
OBB founder Jessica Morris (1963-2021) was diagnosed with GBM in 2016. Frustrated by the paucity of options, she brought together fellow patients, neuro-oncologists, and tech experts to form OBB.
Our pilot study used a free app to help people manage GBM better by tracking symptoms and activities. We're now developing a new data collection program using passive data collected by everyday smartphone usage.
Patient-driven data is the new currency in medical research and apps the new empowerment tool for patients. It could potentially have the same impact as a blockbuster new drug.
OurBrainBank advocates for new and better treatments and improved quality of life for people living with GBM and their care partners. A key tool is our GBM Bill of Rights.
Company Details
- Employees
- 19
- Founded
- -
- Address
- New York, New York 10025, Us
- Industry
- Non-Profit Organizations
- Website
- ourbrainbank.com
- Keywords
- nonprofit, Glioblastoma, patient driven data, brain cancer, patient-centered, mobile device app, PRO patient recording outcomes, GBM.
- HQ
- New York, New York
Ourbrainbank For Glioblastoma Questions
Ourbrainbank For Glioblastoma's website is ourbrainbank.com
Ourbrainbank For Glioblastoma's LinkedIn profile is https://www.linkedin.com/company/ourbrainbank
Ourbrainbank For Glioblastoma has
19 employees.
View email and phone details for 19
employees at Ourbrainbank For Glioblastoma.
Ourbrainbank For Glioblastoma's industry is
Non-profit Organizations
Ourbrainbank For Glioblastoma's top competitors are
Society For Neuro-Oncology,
Rattner Family Office,
Orbit Media,
Ivy Brain Tumor Center,
Gray For Glioblastoma,
Cure Glioblastoma,
Glioblastoma Foundation,
National Brain Tumor Society,
Glioblastoma Research Organization,
The Endbraincancer Initiative - (The Chris Elliott Fund).
Ourbrainbank For Glioblastoma's categories are Non-profit Organizations
Ourbrainbank For Glioblastoma's founding year is 2017
