Parkinson's Disease Alliance of WI

Parkinson’s disease has a significant impact on individuals, families, and society. People living with Parkinson's often require caregivers as the disease progresses and hinders their ability to perform daily activities such as dressing, eating, and walking. As the fastest growing and 2nd most common neurodegenerative disease (behind Alzheimer's), the impact of Parkinson's disease is expected to grow significantly. A Parkinson's disease registry is crucial for several reasons: it helps track the prevalence and progression of the disease, informs public health planning, facilitates research, and aids in clinical trial recruitment. By gathering comprehensive data on Parkinson's disease cases, registries can provide valuable insights into the disease's impact on different populations and potentially identify risk factors, ultimately leading to better treatment and care strategies. When Wisconsin passes it's own legislation, we will join 15 other states in collecting health information about people living with Parkinson's in a way that supports patients' privacy and dignity and advances science and healthcare. In 1996, Nebraska created the country's first PD registry.