Our Mission and Inspiration
As a 501(c)(3) non-profit corporation, our mission is to help prepare patient advocacy groups for clinical trials. We are committed to connecting with rare disease focused patient advocacy groups to guide them towards readiness for natural history studies or the clinical trial phase. It’s our heart’s passion to help these groups achieve their vision.
Why We Exist
Diagnosis is very important to a patient and their families. While a diagnosis can provide some relief, it is very often, “just the beginning”. For individuals diagnosed with a rare disease, there are often no treatments.
Patient organizations that strive to gather data over time and prior to any clinical trial process significantly increase the ability for a Pharmaceutical, Biotechnology or Academic organization to design a more successful drug development program. We believe that the patient advocacy group provides the data and should remain owners of the data. As patient advocacy groups have many goals to achieve, with gathering data and organizing a database, they are not necessarily equipped with resources, either personnel or financial.
Company Details
- Founded
- -
- Address
- Carlsbad, Ca
- Industry
- Non-Profit Organizations
- Website
- http://www.prosfoundation.org
- Keywords
- Working with and for Patient Advocacy Groups, Retrospective Chart Review, Develop and Support Registries, Natural History Studies, Pairing Patients with Registries, Pairing Sponsors with Trials, Finding Patients for Sponsors, Advocate Rare Disease Legislation, Prospective Study Management.
- HQ
- Carlsbad, CA
Pros Foundation -Pathways For Rare And Orphan Solutions Questions
Pros Foundation -Pathways For Rare And Orphan Solutions's website is http://www.prosfoundation.org
Pros Foundation -Pathways For Rare And Orphan Solutions's LinkedIn profile is https://www.linkedin.com/company/pros-foundation
Pros Foundation -Pathways For Rare And Orphan Solutions's industry is
Non-profit Organizations
Pros Foundation -Pathways For Rare And Orphan Solutions's top competitors are
Patient Power,
Clinical Trial Quest, Inc.,
Brainchild Bio,
Pspa,
Luxury Aircraft Solutions,
Synteract,
Cure Hspb8,
Patientevolution,
Rare Disease Ghana Initiative,
Everylife Foundation For Rare Diseases.
Pros Foundation -Pathways For Rare And Orphan Solutions's categories are Non-profit Organizations
Pros Foundation -Pathways For Rare And Orphan Solutions's founding year is 2017
