Screen4Rare Overview
- Website
- screen4rare.org
- Industry
- Health And Human Services
- Employees
- 6
- NAICS
-
Administration of Human Resource ProgramsAdministration of Veterans' Affairs
About Screen4Rare
Screen4Rare is a multi-stakeholder platform launched by the International Patient Organisation for Primary Immunodeficiencies (IPOPI), the International Society for Neonatal Screening (ISNS), and the European Society for Immunodeficiencies (ESID) aiming to exchange knowledge and best practices on NBS for rare diseases. The group’s ultimate objective is, through policy engagement, to work towards ensuring that all babies can have equitable access to newborn screening; a life-saving tool for conditions such as SCID.
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