The Schinzel-Giedion Syndrome Foundation

Company

The Schinzel-Giedion Syndrome Foundation

Non-Profit Organizations West Sussex Uk, United Kingdom 6 employees

Employees: 6
Contacts: 2
Emails: 2
Phones: 1

sgsfoundation.org LinkedIn

The Schinzel-Giedion Syndrome Foundation Overview

Headquarters: West Sussex Uk, United Kingdom
Website: sgsfoundation.org
Industry: Non-Profit Organizations
Employees: 6
Founded: 2019

Keywords

Philadelphia

About The Schinzel-Giedion Syndrome Foundation

The Schinzel-Giedion Syndrome Foundation is a registered charity (charity number 1186327) established in 2019 by an international group of parents of children with Schinzel-Giedion Syndrome (SGS). Our charity is run by parent volunteers and supported by a knowledgeable and well-respected team of scientists and medical doctors on our Advisory Board. Our mission is to provide support to families around the world who are caring for children with Schinzel-Giedion Syndrome, to raise awareness and to facilitate and support medical research that will help us find better treatments to improve the quality and length of life of children living with this rare, life-limiting genetic condition.

The Schinzel-Giedion Syndrome Foundation Contact Details

People in AeroLeads: 4
With contact data: 2
Email contacts: 2; 50.0% coverage
Phone contacts: 1; 25.0% coverage

The Schinzel-Giedion Syndrome Foundation Org Chart

Sample employees and titles

Name	Title	Location	Contact
Carina Varbjerg Olsen	Operations Coordinator Hos Intertek	Denmark	View
Rocío Acuña Hidalgo	Co-founder & CTO at Nostos Genomics	Germany	View
Scott Galasinski	Scientist, Business Development	Greater Chicago Area, United States	Email Phone
Nuala Summerfield	Director, Virtual Veterinary	United Kingdom	Email