TBX4Life

Ultimately, a Cure is found for TBX4 Syndrome On the road to a cure, an international research continues and grows to understand better the processes related to TBX4 gene, to optimize the diagnostics and treatment approaches and to improve the quality of life of affected children and adults. Foster Research Efficient inclusive global framework is established where scientists, clinicians and families can collaborate and drive research about TBX4 together Educate families And also scientific community and general public about TBX4 Syndrome and consequences Connect families Affected by TBX4 Syndrome, enable access to the most recent information and increase the data which is required for the research Raise awareness About this ultra-rare life-threatening disease through social media and through partnership with rare disease networks and other patient advocacy organizations