The Voltage-Gated Calcium Channel Collective (VGCCC) is a global, multi-stakeholder initiative accelerating scientific understanding, clinical development and care for individuals affected by rare voltage-gated calcium channel (VGCC) disorders.
These conditions—often severe, multisystem and underdiagnosed—span a spectrum of neurological, cardiac and neurodevelopmental challenges. While individually rare, they share biological mechanisms, clinical overlap and opportunities for cross-gene therapeutic strategies.
The VGCCC connects patient-led organisations, clinicians, researchers and industry partners across gene-specific communities to:
Promote awareness of calcium channelopathies in clinical and research settings
Facilitate cross-gene learning to inform diagnosis, care standards and treatment development
Provide lived-experience insights that enhance trial design, outcome measures and patient engagement
Encourage strategic collaboration to unlock scalable, cross-cutting solutions in precision medicine
Current genes represented include:
CACNA1A, CACNA1B, CACNA1C, CACNA1D, CACNA1E, CACNA1F, CACNA1G, CACNA1H, CACNA1I, CACNA1S
The VGCCC offers a unique platform for drug developers and translational researchers seeking deeper access to patient communities, real-world insights and partnerships that accelerate meaningful innovation in rare ion channel disorders.
To learn more or explore collaboration, visit thevgccc.org.
Company Details
- Employees
- 4
- Industry
- Public Health
- NAICS
-
Administration of Public Health Programs
- Website
- https://thevgccc.org
- Keywords
- Norwalk.
- Competitors
- KCNT1 Epilepsy Foundation, Juvenate Wellbeing Pvt. Ltd., AAAS Center for STEMM Education & Workforce, CACNA1A Foundation, Tabcorp, Rare Disease Research Network (RDRN), Victorian Gambling and Casino Control Commission, Cure CLCN4, SCN2A- The FamilieSCN2A Foundation, Timothy Syndrome Alliance (TSA).
The Vgccc Questions
The Vgccc's website is https://thevgccc.org
The Vgccc's LinkedIn profile is https://www.linkedin.com/company/the-vgccc
The Vgccc has
4 employees.
View email and phone details for 4
employees at The Vgccc.
The Vgccc's industry is
Public Health
The Vgccc's top competitors are
Kcnt1 Epilepsy Foundation,
Juvenate Wellbeing Pvt. Ltd.,
Aaas Center For Stemm Education & Workforce,
Cacna1a Foundation,
Tabcorp,
Rare Disease Research Network (Rdrn),
Victorian Gambling And Casino Control Commission,
Cure Clcn4,
Scn2a- The Familiescn2a Foundation,
Timothy Syndrome Alliance (Tsa).
The Vgccc's categories are Public Health
