Our project is led and developed by the rare disease community. Since our project commenced in October 2023, we have recruited 21 members for our community working group, including people with lived experience of rare diseases, their families and caregivers, rare disease advocates and patient group representatives.
Our community working group meets monthly to shape the project. They are developing an online platform to facilitate rare disease research and will launch it in November 2024.
Company Details
- Employees
- 7
- Founded
- -
- Address
- Cambridge, Gb
- Industry
- Non-Profit Organizations
- Website
- http://www.rd-rn.org
- Keywords
- with the rare disease community.
- HQ
- Cambridge
Rare Disease Research Network (Rdrn) Questions
Rare Disease Research Network (Rdrn)'s website is http://www.rd-rn.org
Rare Disease Research Network (Rdrn)'s LinkedIn profile is https://uk.linkedin.com/company/rarediseaseresearchnetwork
Rare Disease Research Network (Rdrn) has
7 employees.
View email and phone details for 7
employees at Rare Disease Research Network (Rdrn).
Rare Disease Research Network (Rdrn)'s industry is
Non-profit Organizations
Rare Disease Research Network (Rdrn)'s top competitors are
Ucb Rare Disease Connect In Neurology,
Cambridge Rare Disease Network (Camrare),
Rare Disease Clinical Trial Network,
The Vgccc,
Rare Disease Day,
Rare Revolution Magazine,
Beacon For Rare Diseases,
Rare Youth Revolution,
Timothy Syndrome Alliance (Tsa),
Rare Disease Report.
Rare Disease Research Network (Rdrn)'s categories are Non-profit Organizations
Rare Disease Research Network (Rdrn)'s founding year is 2023
