Rare Disease Research Network (RDRN)
Company

Rare Disease Research Network (RDRN)

Non-Profit Organizations Cambridge, Cambridgeshire, United Kingdom 7 employees
Employees
7
Contacts
1
Emails
1
www.rd-rn.org LinkedIn

Rare Disease Research Network (RDRN) Overview

Headquarters
Cambridge, Cambridgeshire, United Kingdom
Website
www.rd-rn.org
Industry
Non-Profit Organizations
Employees
7
Founded
2023
Keywords
with the rare disease community

About Rare Disease Research Network (RDRN)

Our project is led and developed by the rare disease community. Since our project commenced in October 2023, we have recruited 21 members for our community working group, including people with lived experience of rare diseases, their families and caregivers, rare disease advocates and patient group representatives. Our community working group meets monthly to shape the project. They are developing an online platform to facilitate rare disease research and will launch it in November 2024.

Rare Disease Research Network (RDRN) Contact Details

People in AeroLeads
4
With contact data
1
Email contacts
1
25.0% coverage

Rare Disease Research Network (RDRN) Org Chart

Sample employees and titles
Name Title Contact
David Hogan Patient Advocate at Men’s Rare Wellness Forum
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Chelsea Wong Young People and Family Support Officer at Lupus Uk, Trustee for Cards for Bravery, and Communications and Marketing Officer for the Rare Disease
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Pete Chan On a Mission to Help People Living with Challenging Conditions - Implementer - Advisor - Trustee - Proudly Neurodivergent
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Jo Balfour Managing Director at Cambridge Rare Disease Network (Camrare) and Co-lead at Rare Disease Research Network (Rdrn)
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Employees by Management Level

Individual contributor 3 profiles
Director 1 profile

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