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Screen4Rare is a multi-stakeholder platform launched by the International Patient Organisation for Primary Immunodeficiencies (IPOPI), the International Society for Neonatal Screening (ISNS), and the European Society for Immunodeficiencies (ESID) aiming to exchange knowledge and best practices on NBS for rare diseases.
The group’s ultimate objective is, through policy engagement, to work towards ensuring that all babies can have equitable access to newborn screening; a life-saving tool for conditions such as SCID.
Company Details
- Industry
- Health And Human Services
- Website
- https://screen4rare.org/
- Competitors
- Zinexts Life Science Corp., STREP, Institute for Genomics Education, Workforce & Leadership at Sarah Lawrence College, Queen Mary University Genome Centre, Department of Genetics and Genomic Sciences at Mount Sinai, AMPLIFY, National Urea Cycle Disorders Foundation, VERITY, IPOPI - International Patient Organisation for Primary Immunodeficiencies, International Society for Neonatal Screening.
Screen4rare Questions
Screen4Rare's website is https://screen4rare.org/
Screen4Rare's LinkedIn profile is https://www.linkedin.com/company/screen4rare
Screen4Rare's industry is
Health and Human Services
Screen4Rare's top competitors are
Zinexts Life Science Corp.,
Strep,
Institute For Genomics Education, Workforce & Leadership At Sarah Lawrence College,
Queen Mary University Genome Centre,
Department Of Genetics And Genomic Sciences At Mount Sinai,
Amplify,
National Urea Cycle Disorders Foundation,
Verity,
Ipopi - International Patient Organisation For Primary Immunodeficiencies,
International Society For Neonatal Screening.
Screen4Rare's categories are Health and Human Services
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