Jon Hoffman Email & Phone Number

Achievements:• Passed legislation to expand access to Medigap insurance for End State Renal Disease patients under 65 in Virginia, Kentucky, and Indiana• Passed legislation to prohibit life insurance discrimination against living organ donors in Rhode Island, Wyoming, South Carolina, Mississippi, Michigan, New Hampshire, and Nevada• Passed legislation to provide paid or job protected leave to living organ donors in Virginia, New York, • Passed legislation to mandate coverage of… Show more Achievements:• Passed legislation to expand access to Medigap insurance for End State Renal Disease patients under 65 in Virginia, Kentucky, and Indiana• Passed legislation to prohibit life insurance discrimination against living organ donors in Rhode Island, Wyoming, South Carolina, Mississippi, Michigan, New Hampshire, and Nevada• Passed legislation to provide paid or job protected leave to living organ donors in Virginia, New York, • Passed legislation to mandate coverage of biomarker testing in Colorado, Connecticut, Florida, Arizona, Georgia, Indiana, New York, and TexasResponsibilities: Responsible for strategic planning and implementation of a national state legislative agenda for the American Kidney Fund, growing and managing a regional team to achieve legislative success in over 20 states since August 2023. Develop relationships with policy makers and regulators, raising the profile of the American Kidney Fund as the leading kidney disease advocacy organization. Serve as a spokesman, panelist, and subject matter expertise for external audiences, focusing on kidney disease issues. Plan state advocacy fly-in events, providing training and engagement opportunities for grassroots advocates. Lead a national state-focused kidney disease alliance composed of patient advocates, medical professionals, allied nonprofit organizations and industry partners. Track long term policy priorities and identify emerging topics that can impact the kidney disease community. Show less

Virginia

Co-creator and Co-host of a weekly DC United and Washington Spirit focused podcast called RFK Refugees, featuring interviews with team officials, journalists and notable people in the United fan community.

Achievements: • Conducted direct lobbying and legislator education, resulting in the identification of a lead sponsor, recruitment of cosponsors and introduction of HR 2117, the FASTER Act, and Senate companion, S. 3451, and passage out of the Health Energy and Commerce Committee and full passage of both bill in the House and Senate.• Increased the advocacy segment of the FARE mailing list by 600% since 2016, and an increase of 135% in 2020.• 5 laws passed in states directly engaged… Show more Achievements: • Conducted direct lobbying and legislator education, resulting in the identification of a lead sponsor, recruitment of cosponsors and introduction of HR 2117, the FASTER Act, and Senate companion, S. 3451, and passage out of the Health Energy and Commerce Committee and full passage of both bill in the House and Senate.• Increased the advocacy segment of the FARE mailing list by 600% since 2016, and an increase of 135% in 2020.• 5 laws passed in states directly engaged (Connecticut, Missouri, New York, Texas, Maryland) • Managing transition to new advocacy and grassroots structure that will enable FARE to reach more people with new functionality • Lobbied successfully for food allergy appropriations for the first time in FARE history, securing $2 million in reallocated funding.Responsibilities: Direct, plan and implement all of FARE’s federal and state lobbying efforts, as well as develop comment letters and coordination of regulatory engagement. Building on existing relationships, identify and expand volunteer engagement opportunities that grow FARE’s ability to impact the lawmaking process in states and federally, including leadership of a national Advocacy Leadership Council. Engage in direct lobbying at the federal level and in multiple states and identify and recruit sponsorship and support of pending legislation. Represent FARE in external conversations with media, industry, and patient advocacy partners to build support and understanding of the organization’s policy agenda. Build relationships with grassroots and grasstops leaders and potential leads to create local advocacy teams that amplify FARE national legislative efforts at the local level. Collaborate with the Communications team to develop and execute digital strategies for engagement, including social media on successful state and federal advocacy campaigns. Show less

Reston, Virginia

Washington D.C. Metro Area

Achievements: - Developed and implemented a new advocacy volunteer leadership structure for nationwide deployment, including developing position hierarchy and job descriptions, training materials, and a policy priority evaluation process.- Led an advocacy campaign that helped pass the Gabriella Miller Act, with special recognition given by the bill’s author, Eric Cantor. This bill provided $126 million for childhood cancer research over 10 years.Worked with coalitions and external… Show more Achievements: - Developed and implemented a new advocacy volunteer leadership structure for nationwide deployment, including developing position hierarchy and job descriptions, training materials, and a policy priority evaluation process.- Led an advocacy campaign that helped pass the Gabriella Miller Act, with special recognition given by the bill’s author, Eric Cantor. This bill provided $126 million for childhood cancer research over 10 years.Worked with coalitions and external partners to drive passage of 21st Century Cures Act, which provided $4.8 billion for medical research.- Built social media presence on Twitter and Facebook for the Office of Public Policy to an organic following of 10,000Responsibilities: Assisted with management of a advocacy field team located in different regions across the country, providing issue training, skill building and organizational support. Developed digital strategies for advocate engagement on LLS policy priorities, including social media and online advocacy campaigns, and utilized an array of digital tools to create compelling messaging to advocates and volunteers. Spoke on behalf of LLS on external webinars about non-profit social media advocacy strategies and successes, as well as presenting to internal audiences about the value of advocacy and policy priorities of the organization. Developed internal process documents for field staff on a wide variety of issues, including patient story collection, database management, advocacy metrics and communications and marketing guidelines. Managed relationship with IT vendors to create an updated web presence and online advocacy portal and served on internal advisory boards to develop requirements and UI design for a new website. Integrated Mission and Advocacy into LLS' well known and successful campaigns, Light the Night and Team in Training, including specialized petitions, long term, cross silo recruitment and campaign specific signage. Show less

•Keep thorough inventory of secret classified laptops and other IT devices by way of Excel spreadsheets and a ticket-distributing action response software called Remedy.•Foster and maintain good relationships with a customer-base primarily consisting of federal government employees and Department of Army personnel. •Perform simple troubleshooting on IT devices and serve as an IT technician when necessary. •Serve as a liaison and report data to various levels of authority including… Show more •Keep thorough inventory of secret classified laptops and other IT devices by way of Excel spreadsheets and a ticket-distributing action response software called Remedy.•Foster and maintain good relationships with a customer-base primarily consisting of federal government employees and Department of Army personnel. •Perform simple troubleshooting on IT devices and serve as an IT technician when necessary. •Serve as a liaison and report data to various levels of authority including those in high ranking Army positions.A+ CertifiedITIL v3 Foundations CertifiedActive Secret Clearance Show less

-Performed duties as the executive office assistant in support of governmental relations and lobby activities for the American Academy of Audiology. Contributed input and administrative expertise to a team effort in crafting targeted messages to invoke positive reactions by members of Congress to garner support and to improve legislation for the hearing impaired and delivery of care by audiologist.-Responsible for accurately maintaining a database reflecting of monetary contributions of the… Show more -Performed duties as the executive office assistant in support of governmental relations and lobby activities for the American Academy of Audiology. Contributed input and administrative expertise to a team effort in crafting targeted messages to invoke positive reactions by members of Congress to garner support and to improve legislation for the hearing impaired and delivery of care by audiologist.-Responsible for accurately maintaining a database reflecting of monetary contributions of the members of the Political Action Committees across the United States comprised of audiologists and interested individuals with a common goal to educate and improve the laws and care of the hearing impaired.-Monitored proposed legislation of the House and Senate to determine its relevance to audiology and legislative priorities. Informed academy senior staff and participated in the preparation and delivery of informational materials to sponsors and co-sponsors of legislative proposals. Communicated with administrative staff of Congressional offices to deliver talking points and associated materials.-Participated in crafting language for the agencies strategic communications plan to establish and distribute pertinent information to inform the constituents of the Academy’s accomplishments of the successful lobby activities.-Executed general administrative support for the senior staff of the Academy ensuring such things as data storage, managing procurement of equipment and supplies, and ensuring they were available and accessible to support mission and tasks. Show less

Ma, International Commerce And Policy

Ba, Political Science

Activities and Societies: Young Democrats of America, Study Abroad Prague