Kyra Krass, Phd
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Kyra Krass, Phd Email & Phone Number

IAMRARE® Implementation Lead and Product Owner at National Organization for Rare Disorders
Location: Philadelphia, Pennsylvania, United States 7 work roles 4 schools
1 work email found @rarediseases.org LinkedIn matched
✓ Verified July 2026 4 data sources Profile completeness 100%

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Role
IAMRARE® Implementation Lead and Product Owner
Location
Philadelphia, Pennsylvania, United States
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Who is Kyra Krass, Phd? Overview

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Kyra Krass, Phd is listed as IAMRARE® Implementation Lead and Product Owner at National Organization for Rare Disorders, a with 181 employees, based in Philadelphia, Pennsylvania, United States. AeroLeads shows a work email signal at rarediseases.org and a matched LinkedIn profile for Kyra Krass, Phd.

Kyra Krass, Phd previously worked as IAMRARE® Implementation Co-Lead at National Organization For Rare Disorders and Research Programs Associate at National Organization For Rare Disorders. Kyra Krass, Phd holds Bachelor'S Degree, Biology- Neuroscience Option; Minors In Dance, Psychology, And Spanish from Penn State University.

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Email format at National Organization for Rare Disorders

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*@rarediseases.org
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Profile bio

About Kyra Krass, Phd

I am a research scientist with 10 years' experience. I enjoy designing research to address relevant problems and generate insights. Currently, I work as an IAMRARE implementation co-lead at NORD supporting customers in project management from design through implementation. Additionally, I educate and mentor onboarding clients in best research practices and registry development. Previously I worked as a researcher at the University of Connecticut designing, executing, and analyzing eye-tracking and behavioral studies. I utilized SR Research's Experiment Builder and Prolific for experimental design and data collection; Microsoft Excel, SPSS, and R for data analytics; and Microsoft Word and PowerPoint for data visualization. This experience allowed me to develop expertise in project management through mentorship of undergraduates and collaboration with cross-functional teams. I also was a teaching assistant who educated undergraduate students in psychology research methods. I trained individuals in-person and remotely in research ethics, generating hypotheses, survey design (Qualtrics), data analysis (SPSS), and dissemination of research findings (MS PowerPoint and Word). Competencies: quantitative research, survey design, SPSS, R, eye-tracking methods

Listed skills include Cognitive Psychology, Psycholinguistics, Research, Science, and 40 others.

Current workplace

Kyra Krass, Phd's current company

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National Organization for Rare Disorders
National Organization For Rare Disorders
IAMRARE® Implementation Lead and Product Owner
Philadelphia, PA, US
Employees
181
AeroLeads page
7 roles

Kyra Krass, Phd work experience

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Iamrare® Implementation Co-Lead

Current

- Work collaboratively with the Associate Director for Development to ensure continuous pipeline of clients and provide support to address questions of potential clients- Develop and implement an onboarding experience that results in high client satisfaction- Develop and continuously improve training materials to be shared with clients throughout the onboarding experience- Develop templates for materials to be use for protocol and consent development, data dictionary creation and tools for recruitment- Provide expertise to clients on Good Clinical Practice Guidelines and requirements for developing the materials for submission to Institutional Review Boards- Manage Research Assistants who are supporting the Onboarding process- Provide guidance for the development of valid and impactful data collection instruments that meet the needs of the disease community;- Manage workflows, develop and implement project plans and ensure that project timelines are met, lead internal and external meetings, and drive team accountability for deliverables, proactively identifying and escalating potential issues- Establish infrastructure for continuous evaluation and program improvement.

Sep 2022 - Present

Research Programs Associate

- Support customers in project management from design through implementation and post-launch support- Work collaboratively with I.T. on the development of a registry platform - Educate and mentor onboarding clients in research best practices and registry development- Provide support on registry development including working closely with customers to develop their regulatory documents, develop their surveys, test the content, and support revisions- Assess and mitigate risks associated with project implementation- Establish protocol and develop weekly content for onboarding new clients- Use Salesforce and JIRA to communicate client progress and update project status between departments

Aug 2021 - Sep 2022

Graduate Assistant, Psycholinguistics Lab

Storrs, Connecticut

- Designed and conducted multiple, simultaneous, behavioral science studies which investigated how individuals process events - Analyzed and collected eye-tracking and other behavioral data using Excel, SPSS, and R- Collaborated with interdisciplinary teams across several universities - Translated findings into understandable and digestible stories for individuals with and without research backgrounds - Led and mentored a team of undergraduate researchers while communicating research needs and providing project direction- Continued development of new skills by attending three international workshops for additional training - Developed and implemented a room scheduling procedure, coordinate lab resources, interview potential employees, and act as administrator for a lab group of 40 people - Secured over $70,000 in fellowships and awards to fund research, further education, and support conference travel

Aug 2015 - Jun 2021

Teaching Assistant, Psychology Research Methods

Storrs, Ct

- Developed, edited, and presented training materials for a class of 10-13 students both in-person and remote - Trained 96 students on generating hypotheses, experimental design, data collection, and ethical research practices- Educated students on survey design and data analysis using Qualtrics and SPSS for over 20 group research projects- Guided students on how to evaluate information from multiple sources and break down high-level information into details in the form of a 15-page, APA-style research paper- Oversaw undergraduate psychology exams to monitor test proceedings, discourage academic misconduct, and act as liaison between students and faculty

Aug 2017 - May 2021

Summer Conference Assistant, Conference Services

State College, Pennsylvania Area

- Served on rotating overnight duty for guests of summer conferences and camps and walked rounds throughout residence halls- Participated in weekly staff meetings- Was visible and available to guests on camp/conference arrival days- Responded to guests' concerns and referred to appropriate Conference Services staff- Confronted inappropriate behavior and Penn State policy infractions of guests, documented for conference file, and informed appropriate Conference Services and individual camp staff- Assisted with Commons Desk Duties as needed for larger conferences and to maintain adequate staffing- Assisted with various group and/or individual check-in or checkouts for conferences

May 2015 - Aug 2015

Research Assistant, Center For Language Science

State College, Pennsylvania Area

- Designed and conducted an independent, electroencephalogram (EEG) research project exploring how bilingual individuals process grammar - Analyzed and collected EEG and behavioral data using Excel and SPSS - Developed and implemented a recruitment and scheduling protocol for 70+ participants at two universities (Pennsylvania State University and University of Granada) in English and Spanish - Communicated results and project limitations to other research scientists - Secured over $5,000 in fellowships and awards to support research and conference presentations

Aug 2013 - Aug 2015
Team & coworkers

Colleagues at National Organization for Rare Disorders

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4 education records

Kyra Krass, Phd education

Bachelor'S Degree, Biology- Neuroscience Option; Minors In Dance, Psychology, And Spanish

Master Of Science - Ms, Psychological Sciences- Language And Cognition

Activities and Societies: IGERT Fellow; Connecticut Institute for the Brain and Cognitive Sciences (IBACS) AffiliateThesis: Investigating.

Doctor Of Philosophy (Ph.D.), Psychology- Language And Cognition

Activities and Societies: IGERT Fellow; Connecticut Institute for the Brain and Cognitive Sciences (IBACS) Affiliate.

FAQ

Frequently asked questions about Kyra Krass, Phd

Quick answers generated from the profile data available on this page.

What company does Kyra Krass, Phd work for?

Kyra Krass, Phd works for National Organization for Rare Disorders.

What is Kyra Krass, Phd's role at National Organization for Rare Disorders?

Kyra Krass, Phd is listed as IAMRARE® Implementation Lead and Product Owner at National Organization for Rare Disorders.

What is Kyra Krass, Phd's email address?

AeroLeads has found 1 work email signal at @rarediseases.org for Kyra Krass, Phd at National Organization for Rare Disorders.

Where is Kyra Krass, Phd based?

Kyra Krass, Phd is based in Philadelphia, Pennsylvania, United States while working with National Organization for Rare Disorders.

What companies has Kyra Krass, Phd worked for?

Kyra Krass, Phd has worked for National Organization For Rare Disorders, University Of Connecticut, and Penn State University.

Who are Kyra Krass, Phd's colleagues at National Organization for Rare Disorders?

Kyra Krass, Phd's colleagues at National Organization for Rare Disorders include Tracey Sikora, Neha Gandhi, Marianne M., Amanda Scull, and Lisa Mazzola.

How can I contact Kyra Krass, Phd?

You can use AeroLeads to view verified contact signals for Kyra Krass, Phd at National Organization for Rare Disorders, including work email, phone, and LinkedIn data when available.

What schools did Kyra Krass, Phd attend?

Kyra Krass, Phd holds Bachelor'S Degree, Biology- Neuroscience Option; Minors In Dance, Psychology, And Spanish from Penn State University.

What skills is Kyra Krass, Phd known for?

Kyra Krass, Phd is listed with skills including Cognitive Psychology, Psycholinguistics, Research, Science, R, Fmri, Experiment Builder Sr Research, and Data Analysis.

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