We are an international, independent, non-profit group of ALD patients, patient advocates, and researchers, who collaboratively educate, advocate, and conduct clinical research among the men, women, and children affected by X-linked adrenoleukodystrophy (ALD).
Our Mission is to improve the lives of individuals with ALD by facilitating communication, raising awareness, improving education, and advancing scientific understanding of the disease.
Our Vision is to revolutionize care for ALD by facilitating communication between patient communities and clinical trial networks thus enabling rapid identification, optimization, and implementation of therapeutic strategies and, ultimately, a cure.
Our values commit us to the empowerment and protection of patients and to the cooperative planning, implementation, analysis and reporting of controlled clinical trials, observational studies, and educational activities within the ALD community. We are dedicated to the principles of open scientific communication, peer review, full and open disclosure of potential conflicts of interest, and democratic governance of the organization and its activities.
Company Details
- Employees
- 6
- Founded
- -
- Address
- Boston, Ma 01949, Us
- Industry
- Research
- Website
- aldconnect.org
- Keywords
- adrenoleukodystrophy, patient education, clinical trials, adrenomyeloneuropathy, newborn screening, patient advocacy, rare disease.
- HQ
- Boston, MA
Ald Connect Questions
Ald Connect's website is aldconnect.org
Ald Connect's LinkedIn profile is https://www.linkedin.com/company/ald-connect
Ald Connect has
6 employees.
View email and phone details for 6
employees at Ald Connect.
Ald Connect's industry is
Research
Ald Connect's top competitors are
Global Leukodystrophy Initiative,
Brooklyn Tool,
If I Were Llc,
Femtofluidics,
Envision Biologics,
Bestfriends Veterinary Clinic,
Kcnq2 Cure Alliance,
Grounow,
Solve Healthcare,
Possible By Design, Llc.
Ald Connect's categories are Research
Ald Connect's founding year is 2013
