The Duchenne Data Foundation (DDF) works in close collaboration with the World Duchenne Organization (WDO) to achieve the best possible outcomes for the global dystrophinopathy community. This includes people living with Duchenne and Becker Muscular Dystrophy, as well as people carrying the Duchenne and/or Becker gene mutation.
DDF brings together all sources of data related to dystrophinopathies, to make an impact for the global community. We do this by building innovative approaches to connecting data, and to promote knowledge sharing that will form our strategy into the future. Our strategic direction is built around four key pillars: Research and development; Education and training; Standards of care and quality of life; Data Governance and Access.
Company Details
- Employees
- 3
- Founded
- -
- Address
- Soest, Utrecht, Nl
- Industry
- Non-Profit Organization Management
- Keywords
- Duchenne, Becker, muscular dystrophy, data, healthcare, medtech, patient data, digital tools.
- HQ
- Soest, Utrecht
Duchenne Data Foundation Questions
Duchenne Data Foundation's website is https://www.duchennedatafoundation.org/
Duchenne Data Foundation's LinkedIn profile is https://nl.linkedin.com/company/duchenne-data-foundation
Duchenne Data Foundation has
3 employees.
View email and phone details for 3
employees at Duchenne Data Foundation.
Duchenne Data Foundation's industry is
Non-profit Organization Management
Duchenne Data Foundation's top competitors are
Cureduchenne,
National Organization For Rare Disorders,
World Duchenne Organization,
Bind,
Parent Project Muscular Dystrophy,
Action Duchenne,
Duchenne Centre Netherlands,
Duchenne Parent Project,
Healthcare Global,
Duchenne Parent Project Belgium.
Duchenne Data Foundation's categories are Non-profit Organization Management
Duchenne Data Foundation's founding year is 2015
