The World Duchenne Organization (WDO) is a worldwide organization connecting 52 member patient organizations from 39 countries dedicated to finding a cure and viable treatments for Duchenne Muscular Dystrophy, a degenerative and fatal neuromuscular condition that affects mainly boys and men. Approximately one in 5,000 live male births worldwide results in Duchenne.
The WDO has made it its mission to promote good standards of care, inform patients and create a hub to support and evolve our activities through dynamic advocacy and an active, vocal and informed patient body around the globe.
Our notable advocacy partners include the European Patient's Forum, EURORDIS, ENMC and Rare Diseases International. WDO is an eligible member of European Medicines Agency.
Company Details
- Employees
- 11
- Founded
- -
- Address
- Landjuweel 34, Veenendaal,3905 Pg,netherlands
- Industry
- Hospitals And Health Care
- NAICS
-
Health Care and Social AssistanceSocial Assistance
- Website
- worldduchenne.org
- Keywords
- Defeating Duchenne Muscular Dystrophy, Raising awareness through campaigns and actions, Advocacy, Informing and sharing knowledge with parents and families, Developing Standards of Care, Gathering data and insight into Duchenne, Fighting for social inclusion, Proper genetic testing, New born screening.
- HQ
- Veenendaal
World Duchenne Organization Questions
World Duchenne Organization's website is worldduchenne.org
World Duchenne Organization's LinkedIn profile is https://nl.linkedin.com/company/worldduchenne
World Duchenne Organization has
11 employees.
View email and phone details for 11
employees at World Duchenne Organization.
World Duchenne Organization's industry is
Hospitals and Health Care
World Duchenne Organization's top competitors are
Parent Project Muscular Dystrophy,
Duchenne Parent Project,
Duchenne Data Foundation,
Duchenne Centre Netherlands,
Action Duchenne,
Cureduchenne,
Muscular Dystrophy Association,
Duchenne Uk,
National Organization For Rare Disorders,
Duchenne Parent Project España.
World Duchenne Organization's categories are Hospitals and Health Care
World Duchenne Organization's founding year is 2003
