Duchenne Uk

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Duchenne UK is an ambitious and highly focused charity with a clear vision: to fund and accelerate effective treatments for Duchenne muscular dystrophy (DMD). Duchenne muscular dystrophy is a devastating muscle wasting disease and is the most common genetic killer of children worldwide. In the UK there are around 2,500 people affected and around 300,000 worldwide. It is usually diagnosed between the ages of 3 - 6 and mainly affects boys. Children with DMD gradually lose muscle strength and mobility, and have a limited life-expectancy. But thanks to recent breakthroughs, we believe we can save them. We are advancing and accelerating medical research, as well as supporting families affected by the disease and ensuring they receive the best possible care.

Company Details

Employees
28
Founded
-
Address
Unit G20, Shepherd’s Building, Charecroft Way,united Kingdom
Email
in****@****euk.org
Industry
Non-Profit Organizations
HQ
London
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Independent DMC Concludes that Risk-Benefit Ratio for Sarepta’s DMD Gene Therapy Elevidys Remains Favorable - CGTLive®

Independent DMC Concludes that Risk-Benefit Ratio for Sarepta’s DMD Gene Therapy Elevidys Remains Favorable CGTLive®

Local company on course to smash fundraising target for rare disease charity - Buxton Advertiser

Local company on course to smash fundraising target for rare disease charity Buxton Advertiser

Patient-led development of digital endpoints and the use of computer vision analysis in assessment of motor function in rare diseases - Frontiers

Patient-led development of digital endpoints and the use of computer vision analysis in assessment of motor function in rare diseases Frontiers

Saracens and Duchenne UK | William's Story - Saracens

Saracens and Duchenne UK | William's Story Saracens

Saracens Rugby Club and Duchenne UK join together to tackle Duchenne Muscular Dystrophy - PREM Rugby

Saracens Rugby Club and Duchenne UK join together to tackle Duchenne Muscular Dystrophy PREM Rugby

Realizing the Promise of Gene Therapy through Collaboration and Partnering: Pfizer's View - Scientific American

Realizing the Promise of Gene Therapy through Collaboration and Partnering: Pfizer's View Scientific American

Eli Crossley: I’m playing Glastonbury at 16 - The Times

Eli Crossley: I’m playing Glastonbury at 16 The Times

Chiswick's Local Web site - Chiswick W4.com

Chiswick's Local Web site Chiswick W4.com

Jack was given pioneering drink to beat muscle wasting disease and can still stand. His best friend Eli didn't get the drug and now he is permanently in a wheelchair. Their contrasting stories prove new treatment works, so why is NHS rollout at risk? - Daily Mail

Jack was given pioneering drink to beat muscle wasting disease and can still stand. His best friend Eli didn't get the drug and now he is permanently in a wheelchair. Their contrasting stories prove new treatment works, so why is NHS rollout at risk? Daily Mail

Newport clock tower lit up red marking World Duchenne day - South Wales Argus

Newport clock tower lit up red marking World Duchenne day South Wales Argus

THANKS SO SO MUCH-Liam's new Wheels have arrived ! - Crowdfunder.co.uk

THANKS SO SO MUCH-Liam's new Wheels have arrived ! Crowdfunder.co.uk

'Our sons are dying and we need to put a stop to it' - mum's mission after devastating diagnosis - Grimsby Live

'Our sons are dying and we need to put a stop to it' - mum's mission after devastating diagnosis Grimsby Live

Determined Nailsworth couple’s inspirational battle to help find a cure for their son’s rare and fatal disease - Stroud News and Journal

Determined Nailsworth couple’s inspirational battle to help find a cure for their son’s rare and fatal disease Stroud News and Journal

Linlithgow cyclist conquers ‘Everest’ - The Edinburgh Reporter

Linlithgow cyclist conquers ‘Everest’ The Edinburgh Reporter

Epic walk for charity - PressReader

Epic walk for charity PressReader

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