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The Australian LINEAGE Study: advancing and implementing international guidance on genomic data within local governance frameworks | npj Genomic Medicine Nature

Decentralized databases in biomedical research: lessons from recent events: EMBO Press

International Precision Child Health Partnership (IPCHiP): an initiative to accelerate discovery and improve outcomes in rare pediatric disease | npj Genomic Medicine Nature

How Can We Not Waste Legacy Genomic Research Data? Frontiers

A five-safes approach to a secure and scalable genomics data repository ScienceDirect.com

Global approaches to genomic medicine implementation Science | AAAS

Wafaa M Rashed: A Young African Scientist Calls for Genomics-Driven AMR Policy Oncodaily

Ethical and regulatory requirements for conducting researcher-driven large-scale multinational genetic haematological studies: the INHERENT experience Health Research Policy and Systems

Genomic Data Sharing Spotlight National Human Genome Research Institute (.gov)

Increasing Genomic Literacy Through National Genomic Projects Frontiers

Decentralized databases in biomedical research: lessons from recent events: EMBO Press

Wafaa M Rashed: A Persistent Advocate for Ethical Research and African Policy Empowerment Oncodaily

Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data? ScienceDirect.com

Data sharing ethics toolkit: The Human Cell Atlas Nature

Sharing and Safeguarding Pediatric Data Frontiers

A harmonized meta-knowledgebase of clinical interpretations of somatic genomic variants in cancer Nature

Responsible sharing of biomedical data and biospecimens via the “Automatable Discovery and Access Matrix” (ADA-M) Nature

Sharing health-related data: a privacy test? - npj Genomic Medicine Nature

Towards an Interoperability Landscape for a National Research Data Infrastructure for Personal Health Data Nature

Phenotypic similarity-based approach for variant prioritization for unsolved rare disease: a preliminary methodological report | European Journal of Human Genetics Nature

Data Management of Sensitive Human Proteomics Data: Current Practices, Recommendations, and Perspectives for the Future ScienceDirect.com

COVID-19 pandemic reveals the peril of ignoring metadata standards - Scientific Data Nature

Big data analytics for personalized medicine ScienceDirect.com

Best practices for the interpretation and reporting of clinical whole genome sequencing Nature

Biomedical Data Repository Concepts and Management Principles - Scientific Data Nature

The pursuit of approaches to federate data to accelerate Alzheimer’s disease and related dementia research: GAAIN, DPUK, and ADDI Frontiers

ELIXIR‐EXCELERATE: establishing Europe's data infrastructure for the life science research of the future EMBO Press

Solve-RD: systematic pan-European data sharing and collaborative analysis to solve rare diseases Nature

Benefits and barriers in the design of harmonized access agreements for international data sharing Nature

Approaching Trust: Case Studies for Developing Global Research Infrastructures Frontiers

Having Our “Omic” Cake and Eating It Too?: Evaluating User Response to Using Blockchain Technology for Private and Secure Health Data Management and Sharing Frontiers

Public Involvement in Global Genomics Research: A Scoping Review Frontiers

Registered access: authorizing data access - European Journal of Human Genetics Nature

‘CTRL’: an online, Dynamic Consent and participant engagement platform working towards solving the complexities of consent in genomic research | European Journal of Human Genetics Nature

Analyzing sex imbalance in EGA and dbGaP biological databases: Recommendations for better practices ScienceDirect.com

A Review on Genomics APIs ScienceDirect.com