Verified email-pattern data for Rare Disease Research Network (Rdrn) is currently limited. You can still use the company insights and contact sections below.
Our project is led and developed by the rare disease community. Since our project commenced in October 2023, we have recruited 21 members for our community working group, including people with lived experience of rare diseases, their families and caregivers, rare disease advocates and patient group representatives.
Our community working group meets monthly to shape the project. They are developing an online platform to facilitate rare disease research and will launch it in November 2024.
Company Details
- Employees
- 7
- Founded
- -
- Address
- Cambridge, Gb
- Industry
- Non-Profit Organizations
- Website
- http://www.rd-rn.org
- Keywords
- with the rare disease community.
- HQ
- Cambridge
Rare Disease Research Network (Rdrn) Questions
Rare Disease Research Network (RDRN)'s website is http://www.rd-rn.org
Rare Disease Research Network (RDRN)'s LinkedIn profile is https://uk.linkedin.com/company/rarediseaseresearchnetwork
Rare Disease Research Network (RDRN) has
7 employees.
View email and phone details for 7
employees at Rare Disease Research Network (RDRN).
Rare Disease Research Network (RDRN)'s industry is
Non-profit Organizations
Rare Disease Research Network (RDRN)'s top competitors are
Beacon For Rare Diseases,
Ucb Rare Disease Connect In Neurology,
Rare Disease Day,
Timothy Syndrome Alliance (Tsa),
The Vgccc,
Rare Disease Report,
Rare Youth Revolution,
Rare Disease Clinical Trial Network,
Rare Revolution Magazine,
Cambridge Rare Disease Network (Camrare).
Rare Disease Research Network (RDRN)'s categories are Non-profit Organizations
Rare Disease Research Network (RDRN)'s founding year is 2023
Explore related pages
Rare Disease Research Network (RDRN) company profile
Rare Disease Research Network (RDRN) management contacts
Related company profiles:
Companies like Rare Disease Research Network (RDRN)
Top Rare Disease Research Network (RDRN) Employees
-
David Hogan
Patient Advocate At Men’S Rare Wellness Forum
Littlehampton, England, United Kingdom, United Kingdom -
-
-
Jo Balfour
Managing Director At Cambridge Rare Disease Network (Camrare) And Co-Lead At Rare Disease Research Network (Rdrn)
Cambridge, England, United Kingdom, United Kingdom2gmail.com, camraredisease.org
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