Associazione Italiana Progeria Sammy Basso APS

A.I.Pro.Sa.B. is a non-partisan and apolitical non-profit association that pursues exclusively social solidarity purposes, focused on the disclosure of information and the funding of Scientific Research about Hutchinson-Gilford Syndrome, a rare genetic disease better known as Progeria. The Association, founded in October 2005, was created thanks to the personal experience and commitment of Sammy Basso and his parents Laura and Amerigo, one of the first families in Italy to get involved in the cause of Research. As the official logo was chosen the salamander, a symbol of adaptability and versatility that inspired the creation of the only reference association for Progeria in Italy, where the disease was almost unknown. The main activities performed by A.I.Pro.Sa.B. are to: - provide support and concrete support to people affected by Progeria; - spreading knowledge about Hutchinson-Gilford Syndrome, correctly addressing people who require specific information about Progeria; - raise funds to be destined to research, disclosure and awareness of this pathology, also through collaborations with other international associations; - sponsor meetings between families with children affected by this syndrome; The administration of the association is held by the Board of Directors which consists of 7 members, is renewed every 3 years and is currently headed by President Amerigo Basso. Currently, the Association can count on 150 active members and their contribution has made possible to invest during the years more than 950.000 € in research projects, both at Italian and international level. Among the most important results, obtained by the commitment of A.I.Pro.Sa.B. in collaboration with Progeria Research Foundation, we remember the recognition of the first drug against Progeria approved by the U.S. Food and Drugs Administration.